Hi ladies! I recently discovered this wonderful site, and would love to share my ups and downs with people who understand where I'm coming from.
I'm 42, married, and a sahm to my 6 year old daughter. At around age 40, I started having what I assumed were perimenopause symptoms. I stopped having pms - the mood swings, sore breasts, etc. The week before my period was due became my "good" time of the month. My worst time was the few days *after* my period ended - I had horrible headaches, felt cold and emotionally empty, and just wanted to be left alone. I also had very painful ovulation, with pain in the ovary, bloating and constipation. I started reading about bioidentical hormone replacement, and on my own decided to try a progesterone cream. It worked wonderfully for almost two years - the painful ovulation gradually diminished, the headaches and the empty feelings went away, I felt calm and content, and was sleeping better than I ever had in my life.
Then a few months ago I started having the occasional UTI (very rare for me - I'd never had one at all until just after my daughter was born). I remember having my last positive dip test in November, did a round of an antibiotic, and was fine. Then in January, I started feeling bladder symptoms again (didn't feel exactly like usual, though), returned to the doctor's office, was told that my urine was clear, but was prescribed Bactrim as a precaution while awaiting a urine culture (which was negative).
Symptoms subsided for about a month, then in February everything happened at once - I had a horrible three-week-long cold, which eventually led to a sinus infection, a bout of either food poisoning or a virus, a large infected cyst in my groin, I lost my appetite, and the bladder symptoms came back with a vengeance - a dull, crampy feeling, urgency, and often nausea if I tried to hold it more than a few minutes. At times, I was urinating every 30 minutes. And along with all this, I started having anxiety attacks and insomnia.
I seemed to have all the symptoms of something called Interstitial Cystitis, and read everything I could find about this condition. I was very reluctant to see a urologist, as it seems that the diagnostic procedure often makes it worse, and if it is diagnosed, there's no "cure." I really watched what I ate, started taking some supplements recommended for IC, started using an estriol cream vaginally, and it gradually became manageable. And it definitely flustuates with my cycle - better when estrogen levels are high, worse when they are low. However, the anxiety and insomnia were getting worse, and I finally was able to get an appointment at an "integrative medicine" clinic that specializes in bioidentical hormones. My first appointment was with a PA there, and while she spent an hour and a half with me, and did a very thorough exam, I just felt like she didn't "get" my symptoms. I paid very dearly for a 28-day saliva test, but had to wait about two weeks to srart it. Then there was four weeks of "collecting," then another couple of weeks to get results. She also told me to stop using the progesterone and estriol creams until after the test was complete. Well, the anxiety, insomnia and bladder symptoms got so bad I had to go back to using them, and basically wasted the test.
I got so desperate during this time that I found a Naturopath in another state who does phone consulataions. After spending an hour on the phone with her, she seemed to think something was going on with my thyroid. I did a hair mineral analysis test and a one-day saliva hormone test that she sent me, and called the integrative medicine office to tell them that she suggested doing a full thyroid panel. This time I got to see the MD who started the practice. He didn't seem to think the thyroid panel was necessary, but did agree with the other two tests the ND suggested. He suggested some more supplements, including melatonin, and thankfully I *am* sleeping better. I recently got the results of the hair analysis, along with a recommended eating plan. It says I have low thyroid and adrenal function. I'm still waiting for results of the hormone test - hope to have them in a few days, as I see my doctor again next week.
My theory is that I overused the progesterone - I've since read that it can build up in the system and irritate the bladder. (I've gradually decreased the amount I use, but I can tell that the anxiety and heart palpitations start back up if it gets too low). And I think that at the same time, my estrogen levels were falling. I'm so hopeful that the saliva test bears this out, and that a slightly stronger estrogen will end the bladder symptoms.
I'm sorry this got so long! I'd love to hear any comments or similar stories that anyone might have, especially regarding the bladder symptoms.
Thanks for reading!
annasmom
Full Version: Falling apart at 42
QUOTE (annasmom @ Apr 4 2006, 02:19 PM) 
Hi ladies! I recently discovered this wonderful site, and would love to share my ups and downs with people who understand where I'm coming from.
I'm 42, married, and a sahm to my 6 year old daughter. At around age 40, I started having what I assumed were perimenopause symptoms. I stopped having pms - the mood swings, sore breasts, etc. The week before my period was due became my "good" time of the month. My worst time was the few days *after* my period ended - I had horrible headaches, felt cold and emotionally empty, and just wanted to be left alone. I also had very painful ovulation, with pain in the ovary, bloating and constipation. I started reading about bioidentical hormone replacement, and on my own decided to try a progesterone cream. It worked wonderfully for almost two years - the painful ovulation gradually diminished, the headaches and the empty feelings went away, I felt calm and content, and was sleeping better than I ever had in my life.
Then a few months ago I started having the occasional UTI (very rare for me - I'd never had one at all until just after my daughter was born). I remember having my last positive dip test in November, did a round of an antibiotic, and was fine. Then in January, I started feeling bladder symptoms again (didn't feel exactly like usual, though), returned to the doctor's office, was told that my urine was clear, but was prescribed Bactrim as a precaution while awaiting a urine culture (which was negative).
Symptoms subsided for about a month, then in February everything happened at once - I had a horrible three-week-long cold, which eventually led to a sinus infection, a bout of either food poisoning or a virus, a large infected cyst in my groin, I lost my appetite, and the bladder symptoms came back with a vengeance - a dull, crampy feeling, urgency, and often nausea if I tried to hold it more than a few minutes. At times, I was urinating every 30 minutes. And along with all this, I started having anxiety attacks and insomnia.
I seemed to have all the symptoms of something called Interstitial Cystitis, and read everything I could find about this condition. I was very reluctant to see a urologist, as it seems that the diagnostic procedure often makes it worse, and if it is diagnosed, there's no "cure." I really watched what I ate, started taking some supplements recommended for IC, started using an estriol cream vaginally, and it gradually became manageable. And it definitely flustuates with my cycle - better when estrogen levels are high, worse when they are low. However, the anxiety and insomnia were getting worse, and I finally was able to get an appointment at an "integrative medicine" clinic that specializes in bioidentical hormones. My first appointment was with a PA there, and while she spent an hour and a half with me, and did a very thorough exam, I just felt like she didn't "get" my symptoms. I paid very dearly for a 28-day saliva test, but had to wait about two weeks to srart it. Then there was four weeks of "collecting," then another couple of weeks to get results. She also told me to stop using the progesterone and estriol creams until after the test was complete. Well, the anxiety, insomnia and bladder symptoms got so bad I had to go back to using them, and basically wasted the test.
I got so desperate during this time that I found a Naturopath in another state who does phone consulataions. After spending an hour on the phone with her, she seemed to think something was going on with my thyroid. I did a hair mineral analysis test and a one-day saliva hormone test that she sent me, and called the integrative medicine office to tell them that she suggested doing a full thyroid panel. This time I got to see the MD who started the practice. He didn't seem to think the thyroid panel was necessary, but did agree with the other two tests the ND suggested. He suggested some more supplements, including melatonin, and thankfully I *am* sleeping better. I recently got the results of the hair analysis, along with a recommended eating plan. It says I have low thyroid and adrenal function. I'm still waiting for results of the hormone test - hope to have them in a few days, as I see my doctor again next week.
My theory is that I overused the progesterone - I've since read that it can build up in the system and irritate the bladder. (I've gradually decreased the amount I use, but I can tell that the anxiety and heart palpitations start back up if it gets too low). And I think that at the same time, my estrogen levels wer[font=Times New Roman][size=7]e falling. I'm so hopeful that the saliva test bears this out, and that a slightly stronger estrogen will end the bladder symptoms.
I'm sorry this got so long! I'd love to hear any comments or similar stories that anyone might have, especially regarding the bladder symptoms.
Thanks for reading!
annasmom
I'm 42, married, and a sahm to my 6 year old daughter. At around age 40, I started having what I assumed were perimenopause symptoms. I stopped having pms - the mood swings, sore breasts, etc. The week before my period was due became my "good" time of the month. My worst time was the few days *after* my period ended - I had horrible headaches, felt cold and emotionally empty, and just wanted to be left alone. I also had very painful ovulation, with pain in the ovary, bloating and constipation. I started reading about bioidentical hormone replacement, and on my own decided to try a progesterone cream. It worked wonderfully for almost two years - the painful ovulation gradually diminished, the headaches and the empty feelings went away, I felt calm and content, and was sleeping better than I ever had in my life.
Then a few months ago I started having the occasional UTI (very rare for me - I'd never had one at all until just after my daughter was born). I remember having my last positive dip test in November, did a round of an antibiotic, and was fine. Then in January, I started feeling bladder symptoms again (didn't feel exactly like usual, though), returned to the doctor's office, was told that my urine was clear, but was prescribed Bactrim as a precaution while awaiting a urine culture (which was negative).
Symptoms subsided for about a month, then in February everything happened at once - I had a horrible three-week-long cold, which eventually led to a sinus infection, a bout of either food poisoning or a virus, a large infected cyst in my groin, I lost my appetite, and the bladder symptoms came back with a vengeance - a dull, crampy feeling, urgency, and often nausea if I tried to hold it more than a few minutes. At times, I was urinating every 30 minutes. And along with all this, I started having anxiety attacks and insomnia.
I seemed to have all the symptoms of something called Interstitial Cystitis, and read everything I could find about this condition. I was very reluctant to see a urologist, as it seems that the diagnostic procedure often makes it worse, and if it is diagnosed, there's no "cure." I really watched what I ate, started taking some supplements recommended for IC, started using an estriol cream vaginally, and it gradually became manageable. And it definitely flustuates with my cycle - better when estrogen levels are high, worse when they are low. However, the anxiety and insomnia were getting worse, and I finally was able to get an appointment at an "integrative medicine" clinic that specializes in bioidentical hormones. My first appointment was with a PA there, and while she spent an hour and a half with me, and did a very thorough exam, I just felt like she didn't "get" my symptoms. I paid very dearly for a 28-day saliva test, but had to wait about two weeks to srart it. Then there was four weeks of "collecting," then another couple of weeks to get results. She also told me to stop using the progesterone and estriol creams until after the test was complete. Well, the anxiety, insomnia and bladder symptoms got so bad I had to go back to using them, and basically wasted the test.
I got so desperate during this time that I found a Naturopath in another state who does phone consulataions. After spending an hour on the phone with her, she seemed to think something was going on with my thyroid. I did a hair mineral analysis test and a one-day saliva hormone test that she sent me, and called the integrative medicine office to tell them that she suggested doing a full thyroid panel. This time I got to see the MD who started the practice. He didn't seem to think the thyroid panel was necessary, but did agree with the other two tests the ND suggested. He suggested some more supplements, including melatonin, and thankfully I *am* sleeping better. I recently got the results of the hair analysis, along with a recommended eating plan. It says I have low thyroid and adrenal function. I'm still waiting for results of the hormone test - hope to have them in a few days, as I see my doctor again next week.
My theory is that I overused the progesterone - I've since read that it can build up in the system and irritate the bladder. (I've gradually decreased the amount I use, but I can tell that the anxiety and heart palpitations start back up if it gets too low). And I think that at the same time, my estrogen levels wer[font=Times New Roman][size=7]e falling. I'm so hopeful that the saliva test bears this out, and that a slightly stronger estrogen will end the bladder symptoms.
I'm sorry this got so long! I'd love to hear any comments or similar stories that anyone might have, especially regarding the bladder symptoms.
Thanks for reading!
annasmom
Sorry, I haven't responded to posts in a while and certainly did not mean to include the entire post from anna's mom !!
In the first or second paragraph, you say you're 42, married and a ____ to your daughter. What is the
word? Must be a typo, but I was wondering what you meant.
Sorry you are having so much trouble with your bladder and other symptoms. I have not been bothered with cystitis or UTIs so cannot relate with you on that topic. Have a host of other problems, though, some physical and some emotional.
Glad you found this site and welcome. Hope you find the support you need. Hugs to you !!
How is everyone this morning?....Hope all is well with everyone... 
Ok,as for symptoms today...hmmm...the usual muscle twitching,spasms...also I seem to be very irritable you know...that feeling of if anyone looks at me wrong I will rip their head off...
Ahhhh....this is the beauty of Peri...
(((Hugs)))
Christina
Ok,as for symptoms today...hmmm...the usual muscle twitching,spasms...also I seem to be very irritable you know...that feeling of if anyone looks at me wrong I will rip their head off...
Ahhhh....this is the beauty of Peri...
(((Hugs)))
Christina
Hi Ladies;
Please read my posts on "IS THIS JOB WORTH IT?". My husband and I have have decided that it is time to be re-admitted to the Hospital.
I'm going to go pack now and make sure that I have a list of all my meds, Psych and Diabetic. The last time I was in the hospital, I was not given my Diabetic meds.
See you in a couple of weeks.
Linderful
Please read my posts on "IS THIS JOB WORTH IT?". My husband and I have have decided that it is time to be re-admitted to the Hospital.
I'm going to go pack now and make sure that I have a list of all my meds, Psych and Diabetic. The last time I was in the hospital, I was not given my Diabetic meds.
See you in a couple of weeks.
Linderful
I started falling apart at 42, also. I don't have any of your bladder issues, however. My first "symptom" were very heavy periods. I would bleed in clots for almost two days. This was the only symptom for about three months until my vision started changing and the hot flashes started. It went downhill from there. I never had PMS, but started getting irritable and having mood swings. Then the breast pain and menstrual "migraines" started. I have a history of headaches, now they are more frequent and intense. I noticed I would fatigue easily during the mid to late afternoon hours (which still happens).
It spiraled out of control the day after Thanksgiving, 2004. I got a sudden, acute attack of vertigo which led to vomiting and a trip to the ER because I was sure I was going to die. I have never experienced a situation like that before (and I hope I never do, again!). My entire world was spinning violently, I felt my legs and my arms begin to tingle and go numb. It was truly a frightening experience. Since then, I've been having daily episodes of dizziness and imbalance (diagnosed as peripheral vestibular hypofunction). I'm currently seeing a PT to re-train my brain.
I've seen more than my share of doctors. I have a cardiologist because I am being treated for mild hypertension. I've seen an ENT and a Neurologist, because I wanted to know the cause for my dizziness. I've had CT scans, MRI's and an EEG, to try to determine a cause. I saw my (older, male) gyne who said I'm too young to be starting menopause, so I seeked out a younger, female doctor who validated my symptoms, but immediately began discussing endometrial ablation as an option.
The newest dilema is gastorintestinal issues. This started back in December. I have been diagnosed with GERD and am taking meds.
Is it ever going to end? How long should I expect this to last? Its been almost two years since the first symptom and I've getting increasingly frustrated with the imbalance and headaches. What works for you? Any and all comments, suggestions and support would be greatly appreciated. Thank goodness for this website. None of my friends are going through this. I think I'm going to like it here!
It spiraled out of control the day after Thanksgiving, 2004. I got a sudden, acute attack of vertigo which led to vomiting and a trip to the ER because I was sure I was going to die. I have never experienced a situation like that before (and I hope I never do, again!). My entire world was spinning violently, I felt my legs and my arms begin to tingle and go numb. It was truly a frightening experience. Since then, I've been having daily episodes of dizziness and imbalance (diagnosed as peripheral vestibular hypofunction). I'm currently seeing a PT to re-train my brain.
I've seen more than my share of doctors. I have a cardiologist because I am being treated for mild hypertension. I've seen an ENT and a Neurologist, because I wanted to know the cause for my dizziness. I've had CT scans, MRI's and an EEG, to try to determine a cause. I saw my (older, male) gyne who said I'm too young to be starting menopause, so I seeked out a younger, female doctor who validated my symptoms, but immediately began discussing endometrial ablation as an option.
The newest dilema is gastorintestinal issues. This started back in December. I have been diagnosed with GERD and am taking meds.
Is it ever going to end? How long should I expect this to last? Its been almost two years since the first symptom and I've getting increasingly frustrated with the imbalance and headaches. What works for you? Any and all comments, suggestions and support would be greatly appreciated. Thank goodness for this website. None of my friends are going through this. I think I'm going to like it here!
sschmidty welcome.
I can relate to all your symptoms, but the one that sticks out like a very sore thumb is the dizziness. Your first experience of this was a carbon copy of mine - I have never felt anything so frightening in my life. After various tests in ER I was told they couldn't find anything wrong with me. I had to go to my Dr to be told that I "probably" had labyrinthitis which, as far as I can gather, is more or less the same as your diagnosis. I was also told it could be a virus of some sort, great help.
This was just over a year ago and the first episode took about 8 weeks to recover from, gradually getting less intense. Since then I have had mild bouts of it...until earlier this year when I had it badly (but not as bad as the first time). A neurologist said that I should keep doing exactly what I did before as my brain would compensate for the imbalance. I also get a crushing feeling of pressure in my head and ears.
You say you are seeing a PT...what is that? Here in the UK we don't have the same access to specialists as in the US (where are you by the way?). I am currently waiting for an appointment to see ENT, it could be several months before I even get on the list
I was prescribed antihistamines - didn't work. The only thing that seems to help a little is a prolonged course of ibuprofen - but that upsets my stomach - it may not work for you.
There are many, many posts on the subject of dizziness and the general consensus seems to be that it is the wildly fluctuating hormones that cause this distressing condition.
I can only take comfort from the fact that so many other women have suffered this, and eventually come through it. Sorry I can't be more positive.
I can relate to all your symptoms, but the one that sticks out like a very sore thumb is the dizziness. Your first experience of this was a carbon copy of mine - I have never felt anything so frightening in my life. After various tests in ER I was told they couldn't find anything wrong with me. I had to go to my Dr to be told that I "probably" had labyrinthitis which, as far as I can gather, is more or less the same as your diagnosis. I was also told it could be a virus of some sort, great help.
This was just over a year ago and the first episode took about 8 weeks to recover from, gradually getting less intense. Since then I have had mild bouts of it...until earlier this year when I had it badly (but not as bad as the first time). A neurologist said that I should keep doing exactly what I did before as my brain would compensate for the imbalance. I also get a crushing feeling of pressure in my head and ears.
You say you are seeing a PT...what is that? Here in the UK we don't have the same access to specialists as in the US (where are you by the way?). I am currently waiting for an appointment to see ENT, it could be several months before I even get on the list
I was prescribed antihistamines - didn't work. The only thing that seems to help a little is a prolonged course of ibuprofen - but that upsets my stomach - it may not work for you.
There are many, many posts on the subject of dizziness and the general consensus seems to be that it is the wildly fluctuating hormones that cause this distressing condition.
I can only take comfort from the fact that so many other women have suffered this, and eventually come through it. Sorry I can't be more positive.
OMG!...I was just reading the reply`s on this topic and just realized I put a reply here that I meant to put on the topic "How are we doing today"...rofl...I guess that`s the "being in a fog" symptom...oh my!!!...lmbo...
(((Hugs)))
(((Hugs)))
Hi Annas Mum and welcome to PS
My first symptom was dizzyness - flipping terrifying and then all the other stuff started - first the bloating (GERD) and then the palpitations (hate them with a passion) - and then.......need I go on.
I started at 43 (and 3 quarters!) - I am now 44 going on for 45 in July this year!!
I get strange bladder stuff - more like an urgency to go to loo and it just feels different - muscle tone has changed - I dont know - I just know it feels different. I have cut out caffeine - didnt drink alcohol anyway - and I now drink plenty of fluids & do pelvic floor exercises
Hi Peribelle - scary - you sound JUST like me!!! I concur - I was told labyrinthitis (had it for 6 weeks) and then it was benign paroxysmal vertigo - now it is nothing to do with the ear - they say it is anxiety - hey??? Also had trips to ER to tell them I was dying or something only to be sent home time and again with no real explanation of what was going on. I saw ENT within a few months - infact saw him today about my ongoing giddy head and tinnitus - he is not worried but has referred me to a tinnitus counsellor.....I have been given exercises to help brain learn to compensate - I will contact you if you want to know more
Isnt it funny how we are all seeing the same suite of DRs - ENT, cardiology, gastro.......we all seem to have to reinvent the wheel and by the time we get to Powersurge - exhausted, scared, confused, anxious - we are at our wits end..........then we have to re-educate our brains and our bodies.....what a waste of time!!!!
Anns Mum - I am seeing a herbalist and a counsellor cos mdeic just cant seem to cope wiht menopause over here in UK
You will find many similar stories to yours here in PS - weclome home!!!
Mele
My first symptom was dizzyness - flipping terrifying and then all the other stuff started - first the bloating (GERD) and then the palpitations (hate them with a passion) - and then.......need I go on.
I started at 43 (and 3 quarters!) - I am now 44 going on for 45 in July this year!!
I get strange bladder stuff - more like an urgency to go to loo and it just feels different - muscle tone has changed - I dont know - I just know it feels different. I have cut out caffeine - didnt drink alcohol anyway - and I now drink plenty of fluids & do pelvic floor exercises
Hi Peribelle - scary - you sound JUST like me!!! I concur - I was told labyrinthitis (had it for 6 weeks) and then it was benign paroxysmal vertigo - now it is nothing to do with the ear - they say it is anxiety - hey??? Also had trips to ER to tell them I was dying or something only to be sent home time and again with no real explanation of what was going on. I saw ENT within a few months - infact saw him today about my ongoing giddy head and tinnitus - he is not worried but has referred me to a tinnitus counsellor.....I have been given exercises to help brain learn to compensate - I will contact you if you want to know more
Isnt it funny how we are all seeing the same suite of DRs - ENT, cardiology, gastro.......we all seem to have to reinvent the wheel and by the time we get to Powersurge - exhausted, scared, confused, anxious - we are at our wits end..........then we have to re-educate our brains and our bodies.....what a waste of time!!!!
Anns Mum - I am seeing a herbalist and a counsellor cos mdeic just cant seem to cope wiht menopause over here in UK
You will find many similar stories to yours here in PS - weclome home!!!
Mele
Peri:
Thanks for the response! I'm from the US (Midwest) and PT stands for physical therapist. Just saw her today, in fact. I need to compensate for the imbalance. I can handle the heavy periods, but the dizziness, imbalance and pressure in my head drives me insane! It feels like bad sinus pressure. Like you, my antihistimines (taken for my allergies) don't make much of a difference.
The ENT will probably tell you there is no known cause UNLESS you have a vestibular hearing loss. I did not. My hearing was perfectly normal (my husband and children would tell you otherwise! ).
I'm waiting for all this to end. It seems every couple of months, I get a new symptom. Leaves me wondering, "what next?" Hope all goes well for you.
Thanks for the response! I'm from the US (Midwest) and PT stands for physical therapist. Just saw her today, in fact. I need to compensate for the imbalance. I can handle the heavy periods, but the dizziness, imbalance and pressure in my head drives me insane! It feels like bad sinus pressure. Like you, my antihistimines (taken for my allergies) don't make much of a difference.
The ENT will probably tell you there is no known cause UNLESS you have a vestibular hearing loss. I did not. My hearing was perfectly normal (my husband and children would tell you otherwise!
). I'm waiting for all this to end. It seems every couple of months, I get a new symptom. Leaves me wondering, "what next?" Hope all goes well for you.
Thanks for the welcome and replies, ladies.
I just got my hormone test results, and am more confused than ever. My estrogen level was too high, and my progesterone was too low, which is the opposite of what I suspected. I'm afraid to up the progesterone, since I suspect it is irritating to my bladder, and the estriol cream I've been using definitely soothes my bladder - very confusing.
Also, my cortisol was high, which explains the insomnia and anxiety, I suppose. And DHEA was low - I've been taking it since completing my test, and it does seem to help.
So I'll be taking all this, along with my hair tissue mineral analysis results, to my doctor next week, and hopefully he can help me make sense of it all.
Thanks for the support, guys.
suzyq2 - "sahm" is "stay at home mom." Sorry I confused you!
annasmom
I just got my hormone test results, and am more confused than ever. My estrogen level was too high, and my progesterone was too low, which is the opposite of what I suspected. I'm afraid to up the progesterone, since I suspect it is irritating to my bladder, and the estriol cream I've been using definitely soothes my bladder - very confusing.
Also, my cortisol was high, which explains the insomnia and anxiety, I suppose. And DHEA was low - I've been taking it since completing my test, and it does seem to help.
So I'll be taking all this, along with my hair tissue mineral analysis results, to my doctor next week, and hopefully he can help me make sense of it all.
Thanks for the support, guys.
suzyq2 - "sahm" is "stay at home mom." Sorry I confused you!
annasmom
Hi Annasmom,
I am so sorry you're experiencing all these bladder problems. Having suffered bladder infections 20 years ago, I know how miserable they are. I'm sorry I don't know anything about interstitial cystitis, but I do remember reading about them somewhere on this board. Power Surge has a great search program for the entire site -- maybe doing a search for this subject would help.
I didn't know that too much progesterone could irritate the bladder, and appreciate knowing that. I read Dr. Lee's book, What Your Doctor May Not Tell You About Perimenopause, and came away with the feeling that OTC progesterone could do no harm, only good. I bought some and used the recommended amount to help with anxiety, and it worked very well. However, after a few months of using it, I experienced a great deal of breast soreness, and they became fibrocystic too. My doctor thought it was because of the progesterone cream, so I quit using it. My breasts went back to normal after about two months. Like you, I realized progesterone must accumulate in the body.
About your hormone tests and the surprise of high estrogen and low progesterone -- could it be because our hormones are fluctuating so much, that the test wasn't accurate?
I'm so sorry I am not of any help. I sure hope your appointment next week goes well and yields some answers. Good for you that you're the type of person to research your problem so well and to take charge of your health. Certainly this will help you sort out your problems. Let us know how it goes next week. Good luck!
RedFox
I am so sorry you're experiencing all these bladder problems. Having suffered bladder infections 20 years ago, I know how miserable they are. I'm sorry I don't know anything about interstitial cystitis, but I do remember reading about them somewhere on this board. Power Surge has a great search program for the entire site -- maybe doing a search for this subject would help.
I didn't know that too much progesterone could irritate the bladder, and appreciate knowing that. I read Dr. Lee's book, What Your Doctor May Not Tell You About Perimenopause, and came away with the feeling that OTC progesterone could do no harm, only good. I bought some and used the recommended amount to help with anxiety, and it worked very well. However, after a few months of using it, I experienced a great deal of breast soreness, and they became fibrocystic too. My doctor thought it was because of the progesterone cream, so I quit using it. My breasts went back to normal after about two months. Like you, I realized progesterone must accumulate in the body.
About your hormone tests and the surprise of high estrogen and low progesterone -- could it be because our hormones are fluctuating so much, that the test wasn't accurate?
I'm so sorry I am not of any help. I sure hope your appointment next week goes well and yields some answers. Good for you that you're the type of person to research your problem so well and to take charge of your health. Certainly this will help you sort out your problems. Let us know how it goes next week. Good luck!
RedFox
QUOTE (RedFox @ Apr 7 2006, 12:11 PM)
I read Dr. Lee's book, What Your Doctor May Not Tell You About Perimenopause, and came away with the feeling that OTC progesterone could do no harm, only good. I bought some and used the recommended amount to help with anxiety, and it worked very well. However, after a few months of using it, I experienced a great deal of breast soreness, and they became fibrocystic too. My doctor thought it was because of the progesterone cream, so I quit using it. My breasts went back to normal after about two months. Like you, I realized progesterone must accumulate in the body.
I also read the book...but, never tried the progesterone cream.
Went as far as to buy it and kept it in the cabinet until the expiration date went...I'm just phobic over any kind of medicine.
Forgot who said this... "hormones are hormones, natural or otherwise".
I experience a lot of breast soreness...was taken off HRT last year...so I don't imagine, I will try the cream either.
Was holding out for the, "I can't stand this any longer...stage." Think that came and went, it's hitting again.
Thanks...for sharing that information.
Yep
Annasmom,
I was told that during peri estrogen can be high and progesterone can be low. That was why my doctor told me that I had periods that were lasting longer. I'm confused too, but thats what my doctor told me. Then I also heard that progesterone helped to stop cysts in the breast. I am really confused!
I was told that during peri estrogen can be high and progesterone can be low. That was why my doctor told me that I had periods that were lasting longer. I'm confused too, but thats what my doctor told me. Then I also heard that progesterone helped to stop cysts in the breast. I am really confused!
Yep, like you, I have two full containers of progesterone cream in my cabinet. It's expensive too, about $20 each. I have come to believe what you quoted, "hormones are hormones, natural or otherwise", and have decided to be very careful what I use. I still experience some breast soreness, right before my period, but it's very different than what I had when I used the progesterone cream. Now, they feel tender and sore. It's tolerable as long as I'm careful, don't run, etc. But, when I was using the progesterone, I had stabbing pains, like needles pricking me. Weird, huh?
Judy, I am so very confused too! I have read many times that progesterone cream can reduce breast soreness too.
Now, I have learned a new thing from Annasmom, that too much progesterone can irritate bladders. An important lesson I have learned since joining Power Surge, is that we need to be careful with hormones. As we know, by the way they treat us, they're powerful little puppies!!!!!
RedFox
Judy, I am so very confused too! I have read many times that progesterone cream can reduce breast soreness too.
Now, I have learned a new thing from Annasmom, that too much progesterone can irritate bladders. An important lesson I have learned since joining Power Surge, is that we need to be careful with hormones. As we know, by the way they treat us, they're powerful little puppies!!!!!
RedFox
Hello again, ladies - thought I'd update what I've learned since my original post.
I saw my doctor at the "integrative medicine" practice again last week. We spent most of my appointment going over the huge box of supplements I let the naturopath talk me into buying. We weeded out several he thought I didn't need, or that we thought might irritate my bladder. I kept, and have been taking, an "adrenal support" multi, along with an E and selenium, B1, and digestive enzymes, along with the MSM and Cystoprotek I was taking for my bladder, calcium citrate, magnesium, probiotics, cod liver oil and melatonin.
We also went over the results of my hormone profile. My estrogen was a bit high, but this was after using estriol cream vaginally very heavily (does anyone know if using estriol cream would raise estradiol levels?). And my progesterone was low, after being off the transdermal cream I had been using for a while. DHEA and testosterone were a bit low, and cortisol was through the roof - no wonder I couldn't sleep!
He prescribed a bioidentical estriol/estradiol/progesterone/testosterone cream, to be used vaginally. I've been on it for six days now, and am very pleased so far. I was a bit leary of the progesterone, since I suspected the cream I had been using had something to do with my bladder irritation, but he said that by using it vaginally it wouldn't build up in fatty tissues like it can when used transdermally. Also, I was having more anxiety/heart palps when my estrogen levels were high. So I've only been using half the recommended amount so far. But, I'm also on day 15 of my cycle, when estrogen levels are naturally higher. I might need to use more as they begin to fall.
My bladder irritation has been almost non-existent the past three days or so. It's so nice to actually go two or three hourw without thinking about my bladder! But, as estrogen levels start to fall, it usually gets worse. Maybe with my new hormone cocktail I can ward that off.
And, wonder of wonders, I've been sleeping! My little girl is on spring break and spent a couple of nights with her grandmother, and night before last I slept for ten hours! I've always been such a night owl, I just can't fall asleep early. And we always have to get up early, so getting a chance to sleep in (and actually sleeping!) was such a treat! I guess this a result of getting my cortisol levels down and using the melatonin.
So, I think I'm headed in the right direction - wish me luck, and my fingers are crossed for all of you!
annasmom
I saw my doctor at the "integrative medicine" practice again last week. We spent most of my appointment going over the huge box of supplements I let the naturopath talk me into buying. We weeded out several he thought I didn't need, or that we thought might irritate my bladder. I kept, and have been taking, an "adrenal support" multi, along with an E and selenium, B1, and digestive enzymes, along with the MSM and Cystoprotek I was taking for my bladder, calcium citrate, magnesium, probiotics, cod liver oil and melatonin.
We also went over the results of my hormone profile. My estrogen was a bit high, but this was after using estriol cream vaginally very heavily (does anyone know if using estriol cream would raise estradiol levels?). And my progesterone was low, after being off the transdermal cream I had been using for a while. DHEA and testosterone were a bit low, and cortisol was through the roof - no wonder I couldn't sleep!
He prescribed a bioidentical estriol/estradiol/progesterone/testosterone cream, to be used vaginally. I've been on it for six days now, and am very pleased so far. I was a bit leary of the progesterone, since I suspected the cream I had been using had something to do with my bladder irritation, but he said that by using it vaginally it wouldn't build up in fatty tissues like it can when used transdermally. Also, I was having more anxiety/heart palps when my estrogen levels were high. So I've only been using half the recommended amount so far. But, I'm also on day 15 of my cycle, when estrogen levels are naturally higher. I might need to use more as they begin to fall.
My bladder irritation has been almost non-existent the past three days or so. It's so nice to actually go two or three hourw without thinking about my bladder! But, as estrogen levels start to fall, it usually gets worse. Maybe with my new hormone cocktail I can ward that off.
And, wonder of wonders, I've been sleeping! My little girl is on spring break and spent a couple of nights with her grandmother, and night before last I slept for ten hours! I've always been such a night owl, I just can't fall asleep early. And we always have to get up early, so getting a chance to sleep in (and actually sleeping!) was such a treat! I guess this a result of getting my cortisol levels down and using the melatonin.
So, I think I'm headed in the right direction - wish me luck, and my fingers are crossed for all of you!
annasmom
Hi, Annasmom,
Well, I have Interstitial Cystitis, too. I'm sort-of relieved someone else on the site has it, as I've been here 2 years and never encountered anyone else with it before. At the same time I would NOT wish it on you, or anyone else!!
It's been 14 years of living with IC, and I can honestly say it's gotten BETTER. I've learned exactly what to eat/not eat, do/not do, etc. to live with it. The first few years were pretty rough, and it's not perfect now, but soooo much better.
I'm not on any of the IC medications, although I tried hydroxizine, and then Elavil (a tricyclic antidepressant) back when first diagnosed, both of which absolutely wiped me out. I am currently taking the AD Lexapro for depression that I believe was caused by the hormonal changes of perimenopause. (Believe me, if I was prone to depression before, IC would have done it!!!
Menopause has NOT made the IC worse - just want to encourage you with this. It's about the same as it's always been. I'm not on HRT, by the way.
Anyhoo, just want you to know you have a Sister here. When you mention the irritation, I want to say that I'm helped by taking 2 TUMS every couple hours during "flares" (alkalinizes the urine) - I've read that it's safe to take up to 12 a day, and it helps to carry water everywhere AT ALL TIMES. The minute I get dehydrated my bladder perks right up and starts complaining - and I DON'T want that!
Sounds like you're getting good overall care - hoping you find a good balance soon.
JJ
Well, I have Interstitial Cystitis, too. I'm sort-of relieved someone else on the site has it, as I've been here 2 years and never encountered anyone else with it before. At the same time I would NOT wish it on you, or anyone else!!
It's been 14 years of living with IC, and I can honestly say it's gotten BETTER.
I've learned exactly what to eat/not eat, do/not do, etc. to live with it. The first few years were pretty rough, and it's not perfect now, but soooo much better.I'm not on any of the IC medications, although I tried hydroxizine, and then Elavil (a tricyclic antidepressant) back when first diagnosed, both of which absolutely wiped me out. I am currently taking the AD Lexapro for depression that I believe was caused by the hormonal changes of perimenopause. (Believe me, if I was prone to depression before, IC would have done it!!!
Menopause has NOT made the IC worse - just want to encourage you with this. It's about the same as it's always been. I'm not on HRT, by the way.
Anyhoo, just want you to know you have a Sister here. When you mention the irritation, I want to say that I'm helped by taking 2 TUMS every couple hours during "flares" (alkalinizes the urine) - I've read that it's safe to take up to 12 a day, and it helps to carry water everywhere AT ALL TIMES. The minute I get dehydrated my bladder perks right up and starts complaining - and I DON'T want that!
Sounds like you're getting good overall care - hoping you find a good balance soon.
JJ
Hi JJ!
I'd love to hear more about your IC experience. At what age did your symptoms start, what were your symptoms, how were you diagnosed, etc? What foods trigger your symptoms?
And let me add that I haven't been diagnosed with IC. In all my research, it seemed to be the only thing that could explain my symptoms. But the thought of the diagnostic tests makes me really squeamish. However, I was having a really bad morning today, and finally scheduled an appointment with a urologist. I sure hope I get some answers!
My main symptoms are having to "go" frequently, but, instead of feeling the normal "urge to go," I feel pressure in my abdomen - kind of a breathless, nauseating feeling. On bad days I have to go every 30 minutes - on good days I can wait 2 to 3 hours between bathroom visits. Also, I often have a urethral sensation of feeling "full" or just aware of it all the time. I've been taking a product called Cystoprotek, that is supposed to help re-build the bladder lining, MSM, and cod liver oil, which helps with inflammation. I do feel they have helped somewhat. I try to avoid acidic foods, I've given up coffee (not easy!) and tea, and even peanut butter (I seemed to feel worse on days I had it for breakfast). Tums or baking soda seem to help at times.
I had convinced myself all this was hormone-related, but now I'm not so sure.
Thanls for sharing your story with me. I'm so glad to hear that you've learned how to control your symptoms and are doing better. 14 years is a long time to deal with this - three months has about done me in!
annasmom
I'd love to hear more about your IC experience. At what age did your symptoms start, what were your symptoms, how were you diagnosed, etc? What foods trigger your symptoms?
And let me add that I haven't been diagnosed with IC. In all my research, it seemed to be the only thing that could explain my symptoms. But the thought of the diagnostic tests makes me really squeamish. However, I was having a really bad morning today, and finally scheduled an appointment with a urologist. I sure hope I get some answers!
My main symptoms are having to "go" frequently, but, instead of feeling the normal "urge to go," I feel pressure in my abdomen - kind of a breathless, nauseating feeling. On bad days I have to go every 30 minutes - on good days I can wait 2 to 3 hours between bathroom visits. Also, I often have a urethral sensation of feeling "full" or just aware of it all the time. I've been taking a product called Cystoprotek, that is supposed to help re-build the bladder lining, MSM, and cod liver oil, which helps with inflammation. I do feel they have helped somewhat. I try to avoid acidic foods, I've given up coffee (not easy!) and tea, and even peanut butter (I seemed to feel worse on days I had it for breakfast). Tums or baking soda seem to help at times.
I had convinced myself all this was hormone-related, but now I'm not so sure.
Thanls for sharing your story with me. I'm so glad to hear that you've learned how to control your symptoms and are doing better. 14 years is a long time to deal with this - three months has about done me in!
annasmom
Hi Annasmom, I've been having various peri symptoms for nearly two years now and it is only recently that my bladder problems started. At first I needed to go often and quickly and the smell was terrible. I was diagnosed with a low level UTI and a short course of antibiotics which seemed to work initially but now I'm getting other symptoms - a feeling of twinginess in the bladder region, also in my lower back mainly on the left side (kidneys?) and not rushing to the loo all the time but needing to go more often. The bad odour is also back but comes and goes. I'm bracing myself for another visit to the doctor but have read various posts on this wonderful site which made me aware that bladder problems can be another hormonally related issue! Will let you know my progress - hope things are improving for you, Jess xx
Hi Jessie. Sorry to hear you've been having bladder issues as well. With what you said about an odor and possible kidney involvement, that does sound like a stubborn infection. You might want to look up something called d-mannose. It's supposed to flush out hidden bacteria in the bladder walls. And my last doctor had me do a round of Doxycycline, which he said sometimes takes care of bacteria that other antibiotics miss. However, neither helped me, so I'm assuming that infection isn't my problem.
Have you seen a urologist? I'm sure hoping mine has some answers! Good luck, and I hope you feel better soon!
(Maybe we should start another thread for bladder issues?)
annasmom
Have you seen a urologist? I'm sure hoping mine has some answers! Good luck, and I hope you feel better soon!
(Maybe we should start another thread for bladder issues?)
annasmom
Hi Anna'smom,
I understand (and pray) that you may NOT have IC. In fact, chances are that you don't!
My symptoms began at age 39, with what I thought was a UTI (which I've always been prone to). This time was different, as the doc couldn't culture any bugs - the urine was "clean" with the exception of white blood cells, which appear in my urine to this day. I assumed the antibiotics would work their charms as always, and when that didn't happen, and days of bladder pain and frequency turned into weeks, and then months - well. You know the story!
We tried numerous antibiotics, and nothing helped, so I was sent to a urologist who did a cysto without anesthesia, and he saw nothing. Afterwards, sent to another urologist who"stretched" the uretha with rods - incredibly painful (he did NOT use anesthesia!)
, and that did nothing. I even went to the Leahy clinic - (New England's answer to the Mayo Clinic), and they couldn't help either, except to point out that I had some pelvic floor dysfunction (common with IC). Finally I found a urologist who knocked me out, over-filled the bladder (necessary to see the tell-tale glomerulations indicating IC), got a biopsy of the bladder wall, and voila.
Flare-up symptoms include frequency, sometimes alternating with TROUBLE voiding, pain or burning, pelvic pain. They are often worse after bowel movements (sorry to be graphic), due to the pelvic floor muscles spasming. Sometimes I used to get what I called "zappers," that would put my hair on end. Lower back pain has been a constant, and is something I continue to experience most days, even when the bladder's just fine.
IC changed my life in that I had to stop teaching at our local university (during flares I urinate every 10-15 minutes - try standing in front of a class trying to "hold it in!") Also travel now meant knowing where bathrooms were along the route, etc.
After a few years, I became the Maine State Coordinator for the national ICA, leading a support group, writing newsletters, doing doctor outreach, etc. I gave that up after about 5 years.
All in all, I've improved a lot over time. My diet is different, and I rest more (necessary during flare-ups especially). The bad news is that I've never been able to work outside my home, as a flare comes approximately every 6 months. Altho' those are no longer intensely painful, I do have the frequency, which means keeping good reading material in our bathrooms. And the sense of the pelvic floor being "seized up" is very bothersome at times. I use my hot-water bottle regularly, literally sitting on it, as the heat helps to calm spasms.
You'll be glad to know that many urologists no longer feel it's necessary to diagnose IC with cysto. Many will just review symptoms, and there is talk of replacing the term IC with "painful bladder syndrome," or something like that. They are getting closer to devising a urine test for diagnosis.
My triggers - tomatoes and acid fruits, regular coffee, raw onions, chocolate. Wine. Sometimes I think dairy products cause a flare, or too many sweets. Stress, not enough sleep. Slouching too much.
There's a wonderful acid-free decaf coffee made by the Coffee Bean and Tea Leaf in California. All of their decafs are acid-free, and they are delicious. You don't get the "kick," but you do get the rich flavor.
Hope your doctor visit goes well, and you get to feeling better soon! It's important to keep trying!
JJ
I understand (and pray) that you may NOT have IC. In fact, chances are that you don't!
My symptoms began at age 39, with what I thought was a UTI (which I've always been prone to). This time was different, as the doc couldn't culture any bugs - the urine was "clean" with the exception of white blood cells, which appear in my urine to this day. I assumed the antibiotics would work their charms as always, and when that didn't happen, and days of bladder pain and frequency turned into weeks, and then months - well. You know the story!
We tried numerous antibiotics, and nothing helped, so I was sent to a urologist who did a cysto without anesthesia, and he saw nothing. Afterwards, sent to another urologist who"stretched" the uretha with rods - incredibly painful (he did NOT use anesthesia!)
, and that did nothing. I even went to the Leahy clinic - (New England's answer to the Mayo Clinic), and they couldn't help either, except to point out that I had some pelvic floor dysfunction (common with IC). Finally I found a urologist who knocked me out, over-filled the bladder (necessary to see the tell-tale glomerulations indicating IC), got a biopsy of the bladder wall, and voila.Flare-up symptoms include frequency, sometimes alternating with TROUBLE voiding, pain or burning, pelvic pain. They are often worse after bowel movements (sorry to be graphic), due to the pelvic floor muscles spasming. Sometimes I used to get what I called "zappers," that would put my hair on end. Lower back pain has been a constant, and is something I continue to experience most days, even when the bladder's just fine.
IC changed my life in that I had to stop teaching at our local university (during flares I urinate every 10-15 minutes - try standing in front of a class trying to "hold it in!") Also travel now meant knowing where bathrooms were along the route, etc.
After a few years, I became the Maine State Coordinator for the national ICA, leading a support group, writing newsletters, doing doctor outreach, etc. I gave that up after about 5 years.
All in all, I've improved a lot over time. My diet is different, and I rest more (necessary during flare-ups especially). The bad news is that I've never been able to work outside my home, as a flare comes approximately every 6 months. Altho' those are no longer intensely painful, I do have the frequency, which means keeping good reading material in our bathrooms.
And the sense of the pelvic floor being "seized up" is very bothersome at times. I use my hot-water bottle regularly, literally sitting on it, as the heat helps to calm spasms.You'll be glad to know that many urologists no longer feel it's necessary to diagnose IC with cysto. Many will just review symptoms, and there is talk of replacing the term IC with "painful bladder syndrome," or something like that. They are getting closer to devising a urine test for diagnosis.
My triggers - tomatoes and acid fruits, regular coffee, raw onions, chocolate.
Wine. Sometimes I think dairy products cause a flare, or too many sweets. Stress, not enough sleep. Slouching too much.There's a wonderful acid-free decaf coffee made by the Coffee Bean and Tea Leaf in California. All of their decafs are acid-free, and they are delicious. You don't get the "kick," but you do get the rich flavor.
Hope your doctor visit goes well, and you get to feeling better soon! It's important to keep trying!
JJ
Thanks for your response, JJ. Wow, you've certainly been through the wringer! I've also read a ton of posts on an IC message board, and what so many of you have been through just breaks my heart. (((Hugs)))
I'm hoping that, since I've never had intense pain like most of you seem to have, that it's something else in my case. My "pain" is more of a dull, crampy feeling, then that nauseous, breathless thing as the bladder fills. I had a real good day yesterday with hardly any symptoms. I always get my hopes up when I have one of those days. But I seem to remember feeling better at the same time in my cycle last month - still think there's a hormonal connection somehow.
Interesting what you said about WBC's always being present in your urine. My 6 year old daughter had a couple of bouts of what we called her "pee pee problem" - symptoms of a UTI, but urine clear. This last happened about a year ago. We eliminated several possible irritants, and she hadn't a problem since. Well, yesterday they started up again. She's been complaining of a stomach ache occasionally, then yesterday the frequent urinating started. I had one test strip that I used on her, and it was negative for nitrites but positive for WBC's. I read that this can indicate infection OR inflammation. Do you have any insight on this? She slept through the night, but if her symptoms return today I guess we'll head to the doctor.
Thanks again, and I hope you continue to do well!
annasmom
I'm hoping that, since I've never had intense pain like most of you seem to have, that it's something else in my case. My "pain" is more of a dull, crampy feeling, then that nauseous, breathless thing as the bladder fills. I had a real good day yesterday with hardly any symptoms. I always get my hopes up when I have one of those days. But I seem to remember feeling better at the same time in my cycle last month - still think there's a hormonal connection somehow.
Interesting what you said about WBC's always being present in your urine. My 6 year old daughter had a couple of bouts of what we called her "pee pee problem" - symptoms of a UTI, but urine clear. This last happened about a year ago. We eliminated several possible irritants, and she hadn't a problem since. Well, yesterday they started up again. She's been complaining of a stomach ache occasionally, then yesterday the frequent urinating started. I had one test strip that I used on her, and it was negative for nitrites but positive for WBC's. I read that this can indicate infection OR inflammation. Do you have any insight on this? She slept through the night, but if her symptoms return today I guess we'll head to the doctor.
Thanks again, and I hope you continue to do well!
annasmom
Hi Annasmom,
How is your daughter doing? WBC's can indeed indicate an infection, and I actually hope that's what's going on with her, so she can get on antibiotics and get some improvement quickly. Bladder symptoms are horrible, especially when there's pain - it's a discomfort you just can't get away from. Anyway, praying she's feeling better.
With me, the WBC's are indicative of inflammation without infection. No one seems to understand what's really going on with the "IC bladder," but something is definitely causing the irritation. Researchers are working like mad on this condition given how much of a struggle it can be.
There may be a hormonal connection for you, given how hormones seem to affect every darn part of our bodies. It's actually been a surprise that I've not had any particular setbacks bladder-wise, as peri sure has affected other areas, especially my brain!
You're wise to keep charting this and looking for patterns.
Again, praying that Anna is okay.
JJ
How is your daughter doing? WBC's can indeed indicate an infection, and I actually hope that's what's going on with her, so she can get on antibiotics and get some improvement quickly. Bladder symptoms are horrible, especially when there's pain - it's a discomfort you just can't get away from. Anyway, praying she's feeling better.
With me, the WBC's are indicative of inflammation without infection. No one seems to understand what's really going on with the "IC bladder," but something is definitely causing the irritation. Researchers are working like mad on this condition given how much of a struggle it can be.
There may be a hormonal connection for you, given how hormones seem to affect every darn part of our bodies. It's actually been a surprise that I've not had any particular setbacks bladder-wise, as peri sure has affected other areas, especially my brain!
You're wise to keep charting this and looking for patterns.Again, praying that Anna is okay.
JJ
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