(Edited by Madalon at 11:49 pm on May 10, 2002)
(Edited by Madalon at 1:20 pm on May 11, 2002)
(Edited by Madalon at 11:49 pm on May 10, 2002)
(Edited by Madalon at 1:20 pm on May 11, 2002)
Debbi
(Edited by debrikkia at 12:36 am on May 11, 2002)
I'm so confused ...... my regular dr. gave me premarin creme to use a couple of times a week, as he feels that I'm too "dry" because of the low-dose birth control pill.
At this point, I just don't know where to turn. I've tried everything -- changing soaps, panties, no douching even with vinegar and water, vagistat, and just using the suppository vaginal creams on the outside, but really to no avail.
I just got the Rx for the premarin cream this week and have only used .5 of it two times now -- can't say I notice a significant difference, but I know it does take time for this stuff to kick in.
I'm wondering if anyone out there is having any similar symptoms???? I don't get the pain down the legs at all ...... I guess that's a good thing -- but sometimes my whole area down there is so sore I barely want to sit down.
HELP!
Good luck to you Gail -- I don't even know what to say .... you've been through hell and back!!!!
It's recommended by a doctor in Alpharetta, Georga who treats vulvadynia, and she recommends this.
What happens when you stop the oils......does the burning come back or will this cure it? Are you the one that said the Estrace cream helped with this problem? I'm having a hard time remembering who says what anymore, especially going back and forth to the different boards. I have been on the Estrace cream for about a week now and it is helping somewhat. I only use 1/2 gram. I asked the pharmacist about this and she said it should help repair the damage. I sure am hoping it will. The burning in the vulva/anal area is driving me nuts, not to mention the depression from all this. I am on HRT also but it did not relieve the burning. It relieves the hot flashes and crying and mood swings but it hasn't helped this problem. That is why I wanted to try the vaginal cream. I haven't had a period for 3 months now and I am hoping things do not get worse. I've read where some of the women have posted that when they stopped their periods that they got much worse. That is really scary! Well take care and keep posting. Have a good day.
BUT I have read that the estrogen creams DO help 'toughen up the area' and I intend on trying it. Right now, just using the oil. YES, it does work -- but if I urinate a few times WITHOUT using it afterwards, I SURE can tell the difference. That is why I think the estrogen cream would help -- I think I'm just 'thinning' down there or something and the oils help protect it. Why else would it burn? I just don't get it!!!!!!
As far as the depression goes, I'm with ya kid. I get SO frustrated having to carry my oil to the bathroom and a water squirt bottle -- it's SO demeaning for me! BUT, it does help, and I have to just go with it for the time being.
Another thing - - I wore jeans to work yesterday, and I could not WAIT to get the damned things off when I got home -- the rubbing was driving me NUTS. I mean, this is CRAZY!
Anyhow, keep me posted -- you have a good day too. Now that you mention the Estrace cream, I'm DEFINITELY going to try it.
TAKE CARE!
Keep us posted! have a good day,
Yes, jeans are definitely out for me and have been for a while. The rubbing is horrible. Now it is loose pants for me. The Estrace cream seems to be helping me. I use it vaginally at night and then a little on the vulva/anal area in the morning after showering. I seem to get through the day with just this small amount.
ONe question for you. Do you have trouble exercising now. I use to walk everyday and exercise and I can't do it anymore. Walking makes it worse. I guess the rubbing and friction. Even if I lubricate it will wear off and the skin rubs together. It is horrible not to be able to walk anymore. At least I have found that I can do yoga which is very relaxing and beneficial to the muscles.....helping to tone them and keep me flexible. But it has been like going through withdrawal not being able to exercise the way I use to because of this. I hope eventually that we all get through this bad time and the symptoms go away. It is so depressing to live like this. I don't know about you but I find it hard to talk about this particular problem(the burning) with my friends. None of them are having this problem. The only ones I can talk to are you people on this site and my best friend and my husband. You're right it seems to be so demeaning and embarrassing. I have been asked to go to the beach and I make up some excuse because being out in the heat and walking down the beach would make it crank up and burn. I don't tell the truth about why I won't go.
I have been thinking about starting a menopause support group here in our area. I think it is greatly needed and several of my friends are interested, but finding a place is the problem. Someplace we would not have to rent. Well talk later. Keep in touch.
I am filling my Rx for the estrace cream and I will see how I do with it ..... the dr. told me to use a little vaginally and also topically, and I"m hoping that will help ... I am SO tired or dragging around my Triple Oil and water bottle I can't tell you. Yes, the jeans thing I'm afraid is out. I can tolerate one pair of peddle-pusher type jeans, but that's IT. It's probably because they are so soft and don't rub like my other pants do. I will let you know how I do on the estrace cream. I plan on using that and trying to go down a little bit on the Triple Oil and see if that works. Supposedly the estrogen creams help "toughen up" that area. We'll see.
Yes, I used to work out at the gym all the time. Since this started, I haven't been working out -- quite honestly, I'm afraid to. It's really changed my life. I can take walks with the dogs, but not the way I want to work out. Used to do close to a whole hour on the treadmill at the gym-- and would sweat like a PIG -- so afraid to even TRY that now!
My husband and girlfriend at work are the only ones who know I am dealing with this. I don't dare discuss it with anyone else. Thank God this Board is here and I can talk on here. I think I'd go crazy if I couldn't!!!!
As far as your support group goes, GREAT idea. Couldn't you almost meet at a coffee shop or something? Someone's house? Depending upon how many people there are, that might work out all right. I think it would be a GREAT idea.
Keep in touch -- thanks for writing. At least I know I'm not alone in this!!!!!
Isn't it a bummer that our lives have changed so much because of menopause....and I don't mean for the better. To think I was actually looking forward to menopause before all this started. To not having periods and not having to be concerned about getting pregnant. Wow that sure changed!
If you don't mind me asking ...how old are you? I am 52. Do you also burn down the inside of your thighs and on your feet? At first the doctor's told me it may be neuropathy, but that isn't it. The burning legs and feet only happen when I am burning in the vulva/anal area. My gyn. said that the nerves are connected somehow and that is what is causing the burning feet and legs. But I have a friend that has the burning feet, but she doesn't have the burning anywhere else. Explain that.You would think that since there are so many of us having this particular problem that the doctors would have better answers. Did your gyn. happen to tell you if using the Estrace cream would heal this or does it come back if you stop using it? You will probably notice a difference when you start using the Estrace cream....I have. I have even stopped using the Balneol I was using as a lubricant and only use the Estrace cream in the morning topically and at night vaginally. I think it is definitely helping. It is such a pain to have to use all this stuff plus using a squirt bottle with water. I also don't do that as much either so maybe things are looking up.
The thing that is so depressing is not being able to exercise.......sounds like you and I are in the same boat. I always used to exercise everyday.....sounds like you did to. It is kind of like losing a part of myself and going through withdrawal not exercising. When ever I have tried to start back it makes things worse. Well this is getting long so I will stop now. Please let me know how the cream works for you and keep posting. Hope you get good results.
As far as the burning goes, the only place I don't experience that on the inside of my legs/thighs, but I am experiencing something on my left foot. The middle three toes just burn occasionally for no reason. I notice that the skin is a little chapped, not itching, not flaking, just burning. My husband and I were talking about it and he suggested I use some athlete's foot stuff on it ...... but I don't think that's what it is. Sometimes when I walk too much, the soles of my feet burn also .... but not to the point where it's driving me nuts (like the burning in the vulvar/anal area!)
Yes, you would think that the doctors would have a little more knowledge on this -- we cannot be the only people in the world experiencing this stuff!
My gyn. says that the Estrace cream should help "toughen up" the area -- now I don't konw if that means when you stop it gets "un-tough" or what! I got my Rx filled today and am going to start it tonight. We'll see how it goes. I'm up for anything right now.
I get so depressed thinking that if at 45 I'm going through all this crap (excuse my French) then what the HECK am I going to be up against when I'm 50?!!!!!! I'm scared to death to even think about it!
And yes, I used to exercise quite a bit -- now I'm afraid to rock the boat and do anything! Even having intercourse once a week without any problems is a BIG deal for me! JEESH! Never though I would have to say that.
This is the last week of my diflucan (one a week for four weeks now) -- so I'm HOPING that is the end of the yeast thing. Man, I'm so TIRED of this stuff.
Oh and get this! I went to the breast ultrasound last week (left breast) -- what they wanted to look at from the mammogram doesn't appear to be a problem, BUT they found something else (about 1/4 inch) that needs a special magnification view -- so back to my HMO doctor it goes for a referral. Supposed to have the cone-down mag views on July 9th I think it is.
It just never stops .... sorry this is so long..... but thanks for listening!!!!!!
talk to you soon,your burning bud......
The same thing happens to me when I walk too much my feet will start burning more on the soles , but also before that the vulva/anal area starts up. At first I thought it was the shoes I was wearing but found out quickly that it is not.
I know what you mean about not wanting to rock the boat. If I know something is going to make things worse I just won't do it. Why be in more pain?
I have been on HRT for about 4 yrs. and it never did help the burning. It eliminated the hot flashes and other problems pretty much but never the burning. I am hoping the cream works. Hope it works for you also.
When I find myself thinking negative thoughts.....like How can I stand this pain much longer?, I try to force myself to change my self-talk. For instance I try and say to myself that it will get better and go away and I will feel good again. That is very hard to do for me, but I am trying. My husband is a very positive person(thank goodness....don't know what I would do if both of us were negative)and he keeps telling me that it will get better. Bless his heart......don't know if he really believes what he is telling me or if he is just saying it for my benefit.
I am sorry about your breast ultrasound, but hopefully it is nothing. I have been through that also. It is very scary. Now when I get a mammogram, my husband goes with me since they tell me at the time of the appointment if they find anything. I start with the high anxiety a few months before I even go for the mammogram which is not a positive attitude, but that is just the way I am. I wish it would all go away.
Hope everything goes well for you and we'll take later.Try to think positive.....your burning bud
Thanks for the suggestions!
Started the estrace cream -- for the first couple of days, it was kinda burning me -- but now it's not. I "think" I might be seeing a "slight" difference ..... but I know it takes like 6 weeks to really tell. I use 1 gram vaginally at bedtime, and topically in the AM and PM -- inbetween the water spray, when I start buring mid day, I'm using the Triple OIl stuff .... so far so good -- it's bearable at least!!!!
I know what you mean about being positive -- that's half the battle. I'm REALLY working on this, and my second hubby (we've been married 4 years now), thank GOD he's so supportive too. He really must love me to put up with this! LOL
I'm sure that the breast thing will be fine -- I just have to make sure it's nothing. My app't is July 9th -- MORE waiting unfortunately!
Well, hang in there and keep me posted on how you're doing. I'm just kinda curious why in PERIMENOPAUSE I'm going through such a time .... usually this stuff happens with MENOPAUSE doesn't it????
stay well-hugs,your burning bud.....
I hope you will see improvement. I have been on the Estrace since June 13.......not too long. 1 gram in p.m., topically in the a.m., but just a small amount in a.m.( very small). Today my husband and I were gone all day on business and guess what?...........had no burning and felt pretty good. I didn't even use the spray water or use any lubricant except the Estrace in a.m. before going out. I was worrying that I would start burning in the afternoon and would have to go home, but I didn't . But this is just one day. I hope I continue to see improvement . I think you will too. Maybe we have hit upon something that will help us. Oh how I hope so!I try not to think about what happens when I stop the Estrace cream. Have to think positive!
I started having symptoms way before my periods stopped. I guess it was perimenopause. I started seeing changes around 40 yrs. but nothing drastic and no pain like I have the past 4 yrs. Like I said I have not had a period for 3 months now and hope I never will again. I won't miss them at all.
July 1st I start on the Provera for 12 days but when I get through with those this month I am going to stop all hormones for a week, except for the Estrace cream, and see what happens. Maybe I don't need the oral hormones although 4 yrs. ago before I ever started hormones, my teeth became loose and my hair fell out and I could not eat .......I lost about 20-25 lbs. in a little over a month because of lack of estrogen. When I started on HRT my teeth got OK and my hair returned and I could eat again. I lost muscle also. I was going to be put in the hospital if things did not change soon. I think taking the estrogen saved me. I am sort of afraid to go off of it, but I am going to try and see what happens.
Well you hang in there and we will talk later.
MAYBE we are onto something. I sure hope so.
You haven't had a period for 3 months? Sounds GREAT to me -- I'm afraid I'm a ways off from that though -- but sounds like you are definitely getting there.
Keep up the great work -- glad you got that estrogen thing straightened out -- sounds like you were really ill! Poor thing!
STAY WELL,your burning bud
Sounds like you are making progress also. Now the question is...............how long do we remain on the Estrace. Oh well at least for now the burning is better so why question it now. I'll just keep using it until I see my doctor. Glad you are seeing some improvement!Hope you have a good weekend!
It's funny that I tried 2 other estrogen creams and they did not work..Premarin and Ogen. That just goes to show that it is a trial and error thing.
I am going to stay on it for a while .... and then I might taper off and do every other day or something vaginally and topically in the morning and evenings .... but that isn't an option right now -- feeling too good to mess around. Haven't felt like this for AGES. I'm so jazzed!
Keep me posted from your end ... shall we buy stock now or later in Estrace?
hugs,your burning bud
I am so glad you are getting some relief as I am also. The other morning though I did not apply the Estrace after I showered and after about an hr. I had to go apply it because I could feel the burning starting up. I guess it was just too soon to stop in the a.m. It has definitely helped me to use the Estrace, so I will continue and see what happens.
I guess I am not as up as I usually am today. I think things are starting to get to me. Probably just too much stress all at once. And then too worrying about the hormonal problems. Plus today I started on the progesterone for the next 12 days so I know I won't be feeling good as each day passes on this stuff. Oh well I know I have to hang in there. That is what I try and tell myself. You have a good day and so happy you are feeling better. Your burning bud,
NOW will come the true test -- I finished my four weeks of diflucan .... (but now I'm terrified to let my husband near me for fear I'll get another yeast infection!) I know what you mean about it all "getting to you". I have good days and bad -- just very thankful I have an understanding husband.
So am I right in assuming you are only on the progesterone now? Is that a bioidentical progesterone or a synthetic? I'm reading two books right now, and it appears that the bioidentical hormones are lots better ..... I'm just touching the surface with all this stuff. It's SO confusing!
Well, feel better, chin up -- we're allowed a bad day now and again -- and keep in touch, okay?
your burning bud (but not as bad! LOL)
That's great that you have gone 3 days without using water and oil. To some people that sounds like such a short time but for us it is almost like a miracle(I'm sure you know what I mean...at times just 1 day is a miracle)
I understand what you mean about not wanting your husband near you. For the past 4 yrs. I have felt that way myself, but like you I have an understanding husband.thank goodness. Where would we be if we did not have them? Mine is so supportive of me and of the rough times.
No I am not just on progesterone. I take 1mg. of Estrace pill daily and then I go on the progesterone for the first 12 days of the month which up until 3 months ago would bring on my period the 13th day of the month, but like I said the last 3 months I haven't had one. I just hope things are O.K. I think they are because my cousins also did this. They just stopped getting their periods even though they were on the hormones. The only difference in them is that they did not have any of this burning and dryness. They seem to be doing fine. They are 3 yrs. older than I am. I think when I finish the progesterone for this month I am going to stop the Estrace pill also and see what happens, but I will continue the Estrace cream. I am wondering if things will get worse......it frightens me that they could.
I don't know much about compounding hormones. Mine are synthetic. ...I guess. It is all so confusing isn't it? All I know is that I don't like feeling the way I do and wish this would all end.
I think also that the rain here that we have been having everyday for the past 3 wks. is getting to me. It is so depressing. I have fibromyalgia and the humidity and rain make the body hurt worse. I probably should not be living in this climate. ( southwest FL.) Where is the sunshine? And I was born here. Probably another reason is that it is hurricane season and that is never a good time for me. Anxiety time!!!!! Never have gotten use to those hurricanes. Well I seem to be rambling on and have gotten off the subject, but I am so glad you are having better results. Keep in touch.......your burning bud!!!!!!
Hi! Gail here! I was wondering how you were doing on the EStrace cream. I am doing pretty good so far. Had a good July 4th weekend. My daughters birthday was the 7th so had a get together yesterday. Hope your weekend was also good and you are feeling well. Talk later .
Hugs,Suzie
thanks,
I haven't, but it's one of the many helpful ideas that Dearest has compiled for us on the Power Surge Recommendations Page and Dong Quai helps many women.
Hi,
I e-mailed my address to you. I will see if I hear from you shortly to see if you received it, but thought i would let you know on this site in case you don't . That is fine to e-mail me personally. Look forward to hearing from you. Let me know if you did not receive my e-mail and I will try again. Hope you are feeling OK.
Gemini,
No I don't mind anyone "butting in". The more help and suggestions the better. I am sure the others feel the same way.
Good suggestion about the e-mailing each other -- gonna give it a try!
Have a good one,
Good luck
I noticed the last time you posted here was in May. You were having the burning vagina and burning down the legs and on the feet (same as I have for the past 5 years). I was hoping that you would check this site again and respond if you found out what was causing the burning. I asked Dearest to e-mail you which she did but not response. Maybe you found out what caused the burning and did not come back to post on this site. If you check in please let me know if your burning went away. I have been to numerous Gyn. and have gotten no answers. I use estrogen cream and Balneol for the burning. Hoping you get this message. Or anyone else who has this problem and found out what was wrong.
How long have you had the burning? Does your doctor think it is lack of estrogen? I guess that is what it is for me. I get very dry and then start burning and it is very intense. I have to use Estrace cream everyday in the am and pm. I am hoping that eventually it will go away. I certainly don't want to have to live with this kind of pain for the rest of my life. It has affected everything I do. How about you? I even had to give up exercising because of it. Gail
Wouldn't it be just wonderful to be one of those rare women who say "I had no problems at all with menopause' -lolololol - either they've got short memories or they're lying???
You might want to ask a pharmacist if the discharge is normal when using that type of suppository. He would know. I often ask the pharmacist questions....they seem to be able to answer better than a doctor sometimes. I know I would have a discharge after using Premarin vaginal cream the next day and it was messy, but with the one I use now (Estrace cream) I don't have one. It works better for me.
Yes, wouldn't it be nice to be a woman who had no problems going through meno. Haven't met one yet! LOL Good Luck Gail
This is not a gynecological sourcebook. It's written for the average woman who needs more information about vulvovaginal health. Explanations include vaginitis and skin disorders. Though not part of your genitalia, the urinary tract can have two pain problems -- bladder infections and interstitial cystitis-- that produce V symptoms and V-disorders, the various sorts of vaginitis (vaginal irritation usually caused by an infection): yeast infections, bacterial vaginosis, trichomonas, and a roundup of other types, such as atrophic vagnitis and strep vaginitis. The most common problem, the various sorts of vaginitis (vaginal irritation usually caused by an infection): yeast infections, bacterial vaginosis, trichomonas, and then a roundup of other types, such as atrophic vagnitis and strep vaginitis.
There’s a major V problem -- pain. Vulvodynia (vulvar pain) and vestibulodynia (pain in the vestibule) are just beginning to be recognized by doctors, but they have plagued many women for years. Fortunately, there are some exciting advances in their treatment. Sexual Healing on maintaining sexuality when intercourse is painful. Join Dr. Elizabeth Stewart, Thurs., Nov. 14th, 9 PM, ET in Power Surge Live!
Dearest