I hope someone can give me some ideas - I haven't slept for a week due to this tremulous feeling I'm getting from head to toe - seems to be getting worse. I don't notice it during the days as much but as soon as I try to sleep, it wakes me up and won't allow me to sleep. I took an Ativan and all it did was make my drowsy and dopey. I think I just need reassurance. I just had a physical and results will come back next week - next step is a neurologist. I feel like just giving up. I've had horrible hot flashes for ten years now - finally am on HRT (for last three years) but now am developing these tremors. I see other ladies on this site who have had similar symptoms. Any help?

Read through some of the posts - we've got a whole twitchers/vibrators/buzzers club going on here. It is definitely a symptom of hormonal imbalance for many of us and most get freaked out about it. Many of us have been to neurologists, and it's good to go especially if you are worried to help calm your fears. Try magnesium supplements, they help!

Yes, the same has applied to me. I couldn't get to sleep because of the shaking and it would wake me in the night. I have had it 24/7 for 8 months. I have had all the neuro checks, bloods done, CT scans, detox diet, accupunture, no yeast diet's, and on and on! The only relief I have found is on this board. It makes me so angry really that these doctor's have NO IDEA of what is going on.
Also, at the same time I have had CFS and had 4 months off work. I have tried an esrtogen patch but it has no effect. How long will this go on for?
At least I am not so frightened by the 'shakes' but golly I would like my health back.
Thanks to other suffer's for their input
Megs <_<

Deed, I think this is the most complained of symptom on this board. I feel for everyone who is going through it. It was quite nasty and makes you nuts because you can't imagine it isn't something neurological. But MANY of us have undergone extensive testing, and the only thing conclusive is that our hormones are in an uproar. Please try to think of it as some weird anomaly that is happening to you right now, but it will pass. I promise! I only get it occasionally now, and in very small doses that may be as small as the size of a dime. Could be on my lip, knee, foot, nose -- anywhere. Anyway, I'm here to reassure you that it does not go on forever!

Keep the faith.

Hugs,
Meryl

Just wanted to throw in my two cents about the vibration thing. I noticed that some of you mention taking Ativan. You need to know that Ativan is in the Valium family (Benzodiazapine). It is highly addictive. My internal vibrations started after I skipped several days of taking Klonapin (same family of drugs). What happens is that your body goes into withdrawl. This can also happen when you hit tolerance withdrawl which indicates that your body needs a higher dose.

I immediately began researching the best way to come off of this drug and decided on a very gradual withdrawl. I also crossed over to Valium because it has a longer half life and is an easier way to go. I finally found a Dr. who agreed with this approach based on my well thought out schedule for withdrawl. With every cut in dose, I had terrible inner trembling and vibrations. These would ease up 3-4 days after each cut in dose. It took me 5 months to come down off of .5mg of klonapin. It was a rough ride, and I still experience bouts of internal vibrations even after a year off of this terrible drug.

Dr.'s in the U.S. don't seem to recognize the difficulty some people have in stopping benzo drugs. I got all of my info from the UK where they are more up on this.

Diane

I have been having internal tremors for about a year. I actually figured it out when I started having visual problems. It was though my eyes were loose and shaking, especially when I was walking or chewing food. After seeing eye doctors, thyroid specialist, nuerologist, and many others, I decided to pay real close attention to my body and realized that I had an internal vibration or tremors that correlated with the nystagmus (involuntary eye movement). I don't feel the tremors as much when I'm moving, mostly at night and when I sit still or put pressure on my arms or legs. Also, when resting, it seems as though every 6-7 seconds I feel a pause and it's as though my ears fill with pressure. I've recently seen an ENT and they have ruled out vestibular disorders. I'm curious to see if anyone has had similar symptoms with eyes and ears. I did have a blood test for menopause and the doctor said I am not in menopause. I have never felt so "defective" in my life, not to mention crazy based on all of the specialist that I have seen that can't seem to figure it out! Thanks for listening.

I just discovered you fabulous group of ladies today. I want to say THANK YOU, THANK YOU, THANK YOU. I have been suffering with internal tremors, vibrating, buzzing, anxiety and panic attacks for 3 months now. Like most of you, it came out of the blue one day. Was working on the computer when all of a sudden my body starting having an internal tremor and I was consummed with anxiety. It subsided after a few hours but over the next several weeks it got worse and worse. The tremors was creating more anxiety which creates more tremors, well you know the cycle. I now have them 24/7 throughout my entire body. I might get some relief for brief periods during the day but then I anxiously await for them to return... which they do.

So there I sit on my 50th birthday in my doctors office begging him for help. He thought maybe my hypo thyroid had gone hyper. Bloodwork results came in several days later showing all was normal. I was so consummed with thoughts of having a horrible fatal disease that I was paralyzed with anxiety and could barely get off the sofa. But on the other hand, I wanted to run and run and run and jump out of my skin. After a major panic attack the doc put me on 5 mgs of Lexapro. It immediately helped with panic but took about 4 weeks to control the anxiety. In the mean time the doc lowered my dose of Armour thyroid on the chance that my numbers might be too hyper for ME. It's been 16 days of a lower dose and I'm still suffering from the tremors.

I had decided today that I would google up internal tremors and prepare myself for terrible news when I visit with the neurologist in 2 weeks. When you suffer from anxiety/panic it's very easy to become an armchair doctor and diagnose yourself with every horrible thing you come across, so I had avoided doing that. But God and my guardian angels led me straight to you instead. And what a relief!!! When I read all these posts, and particularly Sandy's as she describes to a T what I'm experiencing, I am overwhelmed with relief. I had never heard of this symptom from menopause.

I am calling my GYN in the morning to schedule an appointment. I had my uterus removed about 12 years ago. When I saw my GYN last November he told me, without doing any bloodwork, that I was probably post menopausal since the ovaries tend to quit working several years after the uterus is removed. I will be demanding an FSH test and then ask to be put back on Bi-est. I felt really good when I took it years ago, but went off of it when I had a suspicious area in my breast they were watching (it was negative). That scared me so I just never went back on it. But living with these tremors is too much. It really is making me crazy & controlling my life.

I've wasted the entire summer consummed with these symptoms, but NO MORE. I will take control now. I already started on the calcium/magnesium supplements tonite. And I will be doing a lot of reading.

Sorry this is so long but again it is such a relief to know I'm not alone. THANK YOU from the bottom of my trembly little body.

Tikigirl, I am so, so sorry that you and the other ladies are going through this. I don't know if any of the ancient posts are archived, but I've posted in this category many, many times, and I can't tell you the relief I've gotten from the other members of Power Surge who have experienced this, especially Dearest. I've been very, very angry at doctors for their lack of understanding and even belief that this symptom and the anxiety that accompanies it actually exists and is caused by our hormonal imbalances. It wasn't really my gynecologist's fault, though, as I didn't consult him as the symptoms seemed to be neurological. Had I gone to him first, I think I would have had a quicker and better answer.

Here's hoping your vibrations are short-lived and you can get on with a normal life!

Hugs,
Meryl

HI Tikigirl,

Welcome to Power Surge. T his is the BEST place on the Internet to be. I have probably told 100+ women about this site. I have to say if it wasn't for PS I would probably be in a mental institution since Dr's weren't giving me answers.

I also have the internal tremors (my worse symptom) all this for me started out of the blue...woke me up from my sleep in March. Been to 12 Dr. now and now I am up for $20,000 in out of pocket expenses. Once the medical Dr.'s didn't help me( they were the ones my insurance was covering), I moved on to the Chiro's, ND, Accupuncturists, holistic physicians,Gua Sha treatment people, medical massages, etc.

I have had full blood work done 4 times, urine collection for hormones, saliva collection, etc.Each Dr. naturally think they have a better test. Anyway after all that my estrogen is normal, I am having my normal peaks during my cycle but my progesterone is not even detectable.

I live in Ohio and I have flown out to California to seek help from a famous Dr. after 10 days of his program he looked at me and said " I don't have any answers for you" Then I went to another famous one in Alabama...he gave me an RX and it was making me feel like I was going to pass out even though I was only taking 1/4 of the dose.

Supplements, drinks, shakes, soy bars, essential oils, etc. You name it and I have bought it, and tried it. I have to say last night was probably my worst tremors yet.

Books, I have bought probably 20 menopause, hormone, anxiety, mind, wellness books over the last 5 months and the funny thing is you will not find 1 that even remotely mentions tremors.

When you go to the Dr. and explain these tremors they will take on the deer in the headlights look. They will say things to you like " Oh you mean you can't quite your mind, like you keep going over the grocery list in your head?" LOL NO I SAID I AM VIBRATING ALL OVER!!!!!!!!

I am so happy you foung this board. When mine gets too bad and I can't sleep from it I just get up and come here and read. I thought I was the only one, as you did.

My panic attacks basically stopped once I found this site.....I had gotten to the point I couldn't go into a grocery store! Now my chief complaint is the tremors and the rapid heartbeat.

I wish you luck and I hope you are lucky and find a Dr. who is smart enough to know and humble enough to listen. If you do, please share

My advice is to ask the Dr. before you start spending $$$$ if they have ever treated anyone with tremors from hormones.

Welcome to PS and a big huge HUG from all of us from the SHAKERS CLUB

Jenny

Hi, I joined up yesterday and this is my 2nd letter. I wrote about the "zapping" of my brain in another area. I came across this subject today and what a relief, I thought I was the only one in the world that had this as well. I have seen a nurologist it started out as like a twitching in my legs and arms, mainly when I went to bed and it woke me up. Then one day my left calf muscle twitched non stop for a week. Thats when the twiching really started. My thighs were bad, it was like having an eye twitch but 100 of them in my legs. This has been going on for 7months, but to my relief its become now more of a vibration or shimmering, sometimes up to my neck. When at a friends today we were talking and I spoke of the zapping and she has it as well! I couldnt believe it, she was on the verge of going to the GP, I told her about me and others from this site and I will print out info fro her as they are not on the net. The nurologist actually said he could do nothing for me, to live with it. He did all the tests etc and everthing has come back normal. I can't tell you what a relief it is to know other women are having the same thing happening. Why is this not recorded in the Menopause books, all the odd things that happen? Maybe someone should write one. I have a diary for my daughters and putting everything down so that they know that they are normal. My mother doesn't rem ember her time so I thought this was the best thing to do. Thankyou for allowing me to have my say. choco from australia

Thank you Meryl and Jenny for your warm welcome to PS. I have gotten so much relief from the anxiety just reading about it on the site. I'm still tremoring, but I'm able to move my mind away from it instead into it. I'm going to try to get to the healthfood store today and get some slow-mag that some of the other ladies have recommended. I am telling everyone lady I know about this website. No one I've spoken to has ever heard of this tremor/vibration symptom with menopause. It's amazing some GYN doesn't do a complete study on this. My mom told me when she was a teenager her girlfriends mother hung herself during menopause. She said it wasn't unusual for women to get really nutty back then. Wonder if they were all vibrating and trembling too. It so wonderful to know that the medical community is more concerned about men's erectile dysfunction than about a true medical condition that ALL women will experience. This week I will be reading everything I can find on this website.

PS to Jenny. You have really been thru the mill trying to find answers. My girlfriend and I were reading your post with our jaws on the floor. You didn't waste anytime in looking for an answer. This started for me at the end of May and I've only been working with my GP. Because of my thyroid it takes at least 4 weeks to notice any physical difference with the new medicine dosage so that has been a holdup for me. I did see a nurse practioner at a neurologists office who said it was either anxiety or my thyroid. I'm schedule to see a neurologist next week and then if I didn't get any answers it was on to the accupuncture doc and the endocrinologist. But I think I'm going to put all that on hold now until I get a FSH run in 2 weeks. Then I'll try some of the suggestions on this board. I say this with tongue-in-cheek, but thanks for doing all the leg work. As for your suggestion in asking the docs if they've ever treated anyone for this before, I will do that and then hand them copies of posts and remarks from this website. Maybe we need to be educating our doctors.
Best wishes.

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I haven't read anything that sounds like the kind of tremors I've been having. For about the past six months I've been feeling like a "bobblehead " . I don't feel it during the day or when I'm busy doing something , but when I sit down at night to relax, my neck and head just feel like they can't settle down with the rest of me. It also happens when I am in bed before I go to sleep. I can't help remembering Katherine Hepburn's wobbling head, can't remember what she had . Mine is on a much lesser level. I don't think it's even outwardly visible, just something I feel inside more than anything else, like my head gives a tiny little jerk every now and then. If I really try to relax my shoulders, it seems to be better. Hope it is nothing permanent - just another meno problem- but wondered if anyone else had this happen. It's so difficult to describe some of the things that happen, everyone probably has their own description on what is happening to them.

Hi dmcc34 -

I have been experiening the "vibrations" for about 6 months, always at night.
But I also get these weird sensations with my eyes and ears. It is as if a pressure is building up, and then just as quickly it stops. I have not mentioned this to anyone (especially my husband who already thinks the vibration thing is all in my head) because I just didn't think it was related. How often does this happen to you? Is it related to stress or a certain time of the month? I haven't really paid much attention to when it happens for me, but now that I have found someone else with the same symptons I will defintely pay better attention to the timing.

Do I really have to get old?

Hi...I'm new to this site but like everyone else...very glad I've found it. I've been experiencing these tremors for several months now and they can be so frightening. The one time I really felt like an earthquake was happening and the bed was shaking so much it woke my husband up. My heart felt like it was about to explode out of my body. Fortunately, it hasn't happened as severely as that again, although the whole bed still vibrates when they I'm experiencing it. Last night it happened again...hence, me coming onto the internet in search of clues. I told my doctor about it but he just looked at me very strangely.

I'm 37. There was some mention that I might be going into an early menpause last year but then it was just forgotten. I have a chronic bowel complaint so I have just been putting things down to the medication I'm on but now I'm not so sure.

I've also been waking up feeling very hot and having to throw off the covers which I know will sound familiar to some of you. I'm anaemic too with lots of allergies and extremely painful periods. I'm going to stop there!

So glad to have found people who understand this horrible shaking.

Tweetypie...UK

Hi Tweetypie,

Like me you are a newbie and I was most touched by your post. I would never in a million years tell even the people at work that I suffer from tremors at night as well as during the day. I have never ever come across anyone who has had these weird things . Was beginning to think that I was really out of this world. Up until yesterday when I signed up on PS I was ready to give up because all these symptoms that I have been experiencing . I am so encouraged to know that weird and I mean weird symptoms are not just my lot.

The tremors at night are particularly strange because we are meant to sleep and when the body starts doing strange things that we cannot control , it is scary.

However I am sure that day by day we will all be able to help each other because we are able to share all these experiences . I find the tremors subside a little when I take really deep breaths and concentrate on the breathing , about four or five times. Big breaths in and very slowly breath out through the mouth. Yogic type breathing.

Hope this helps a little


Flying Fairy

Hello to everyone and a special hello to Flying Fairy! Thanks for your reply. What an amazing tool the internet can be...that people who would normally feel very alone with these strange symptons can now chat to people who totally understand.

Isn't it bizarre that the medical profession seems to not have a clue what all this is about? I wonder how many other people are suffering in silence? And are there any men with the same problem?

One thing's for sure...we're not on our own...that helps, doesn't it?

Tweetypie

Hi! I'm a newbie, and about your age - I just turned 39 a few days ago. For the past decade I've noticed big changes in my periods and overall health: allergies, migraines, sinus infections, overall illness, depression. Also, my periods have gotten more painful, are very close together and are accompanied by hot flashes and night sweats and *shaky hands*, just to name a few of the **surprises**. I've tried birth control pills of all sorts. Nothing and no doctor could help. Finally I took things into my own hands and started using natural progestrone cream. I know it works for some women, but for me it just made my symptoms worse. I discontinued the cream and started using black cohosh. In about a month, I noticed some relief, thank goodness!! I've read that BC produces estrogen-like effects in the brain. Knowing that I responded positively, I'm going to try small doses of natural estrogen cream/estriol next, to see if I can't get even more improvements!

Lynette
xx

Hi Lynette

Thanks for your reply. I haven't heard of Black Cohosh...where would I get that from? A health food shop maybe? Your scenario sounds very similar to mine. At least it's good to know there are lots of others in the same boat. Hope your health continues to improve. Tweetypie