Dear all,

I have been coming to this board for help and support for the past 5 months or so and have found that all of my symptoms are here. The past week has been really tough for me with major fatigue, depression and muscle issues. Anyway, my doctors are really thinking that what I have is not PM related but is CFS. This does seem to fit because I my symptoms are here all of the time. This news is very upsetting because I have spent the past 5-6 months working on my hormones, etc. And from what I've read about CFS, I have a huge battle in front of me in order to get well. I do think there must be some connections with PM an CFS...maybe my hormones kicked it off...Anyway, is there anyone with experience woth this disease that could offer the same reassurrance that these great ladies have given about PM.

Thanks.
JP

JP

I know exactly how you are feeling. I have had a terrible week with fatigue especially since coming back from NC. I am going to call my doctor tomorrow to try and get another appointment. The last time I saw him, he thought I might have CFS and wanted to wait a few months to see if the fatigue went away. I have been doing alot of reading on this subject. I was diagnosed in November with high liver enzymes and a very high sed rate. He said it was caused by some type of unknown virus. THAT is when the fatigue started. Last night was very bad, I wanted to go to a hospital because I felt really terrible. Unfortunately, my husband works nights so I am mostly alone during the night. I just printed off some information on what blood work is needed to help with this diagnoses. I am going to bring it to my doctor. I have already had tons of tests back in November and that is when the wierd readings showed up. My son graduates from college this weekend and I am praying to feel at least a little better so I can enjoy it. I also noticed this week that the calf (left) that twitches 24/7 is definately smaller that the right now. The neuro ruled out all the major illinesses but something is going on to cause this. Know that I am right here with you. I am dealing with this also so please keep in touch with me. If you find any interesting information, let me know. I have been reading alot on the CFS subject and what vitamins or supplements might help. Two of the major things that can trigger CFS are virus and a time of incredible stress. I had both of those in November. I use to think this was hormones, but I am not so sure now because my MD gave me a prescription for ambien so I could sleep but I still wake up exhausted feeling. I am thinking of you and please keep in contact with me.

Kim

Oh Kim,

I am so sad. Thanks for writing. The stuff I keep reading about CFS is so discouraging. I went to the CDC website and called the support group person yesterday...she is in a REST HOME! I was totally freaked out. Maybe this is why your posts made so much sense to me in the first place. Our symptoms are so alike...I forget how old you are? My kids are 16 and 12 and they really need me right now. I have had the same problem with Ambien ...what dose did you take? One of the things I read said that people with CFS are more sensitive to medication...probably why I couldn't take any of their AD's. I take Ativan when I am anxious (pretty much all the time)...that makes me feel better, but adds to the tiredness. Have you tried anything for depression? Do you have and sore lymph nodes...trouble concentrating .? I also had 2 red flags in my blood tests, but even if they say "yep, this all points to CFS", I don't think there is anything to do for it. There is a clinic near me that I am going to try to get into ASAP, but when I called, they said it would probably be a month or more before I saw the doc. This is so crazy when you feel like you're dying all the time. I have a wedding and 50th amnniversary to get through this summer and I am dreading both. Keep me posted on the graduation, I hope it goes ok. Keep sharing info and we can PM each other if you don't think others are interested in this stuff. I hate that you are going through this, but glad you are here.
xoxo JP

Kim,
Can you explain what you mean by a very high sed rate? Is your liver functioning normally other than elevated liver enzymes? What tests have they carried out for any diagnostic abnormalities? How can your doctor state that the elevated liver enzymes were caused by an unknown virus if he doesnt know what virus it is!

Sorry for all the questions but depending on what liver disorder you have (if any), one of the symptoms is tiredness and may not be CFS at all.


Take care,

Gez~

Hi JP

My doc told me it is very hard to diagnose CFS and that is why he sent me home in March with out one. I have come to the point where if he doesn't look into this more, then I will find another. I am very happy with my current doc and have been for the past 25 years, but I am truly suffering with this fatigue and need to find some answers. I know he has done all the blood work, but I don't want to find out I do have something else and nothing was done. I am 49-will be 50 in August. I had five months of no periods until April when I had one for 22 days. I feel like my life is slipping away, and no one cares. My husband has been great and my parents understand, but I want my old life back. There have been so many events in the past six months I have not been able to enjoy. I have not taken anything for depression, since doc did not think I had it. I will be depressed very soon if things don't change. He was afraid that it would make me more fatigued. Work is becoming very difficult and it is getting to the point that I really might have to leave. My husband is a pharmacist and has also been doing research on what might help, but has come up with nothing so far. I don't think there is anything to be done except manage the fatigue the best you can. I have days when I actually feel like I am dying. I know you have that also. We have decided to cancel our vacation plans for September since I don't think I will be well enough to go. We had already put deposits down, and will lose that. I just can't manage it. I don't know what I would do if I had kids still at home. They are both at college so I guess I am lucky in that respect. All the info on CFS is very discouraging but I think if I at least had a definate diagnosis, then it might be a tiny bit easier to deal with. I just want to know.. I will keep reading and see what I can come up with. Keep writing and you are in my thoughts. I will keep you posted on what is going on with me also. We are heading up to Maine for graduation on Thursday, so I probably won't be posting that whole weekend. We could also PM each other to keep in touch. I do not have tender lymph nodes or sore throats. There are lots of other symptoms that I do have that are also listed under CFS. Some are back ache, insominia, dry eyes and of course the unrefreshed sleep. There is tons of information out there which I am also going to bring to doc when I get in to see him. I don't think he knows much about it. Keep in touch and take care. I know how you are feeling..

Hugs
Kim

Hey Gez,

I guess they can tell from a high sedamentation rate that your body is trying to fight a virus or infection. The doc said it is very common for CFS people to have a high sed. rate . Its interesting because I also just had a blood test come back saying my iron is way to high. This can apparently cause liver damage and can be associated with liver desease, although my doc didn't seem too concerned. It means my body is holding on to extra iron. Seems strange since I feel like I'm anemic!!! Anyway, there you go...I hope your feeling better,Gez.
JP

Hi JP

Thanks for explaining that but what exactly is a sed rate? I never heard of that here in the UK. Anyway, I wonder why your iron levels are so high, thats strange and yes, too much iron can result in Gilberts disease is it? Hell, I dont know!

Ive had raised liver enzymes for 9 years and my doctor told me that I had an Epstein Barr Virus that attacked my liver but now I dont have it anymore-but the enzymes are still raised and theyre trying to figure out why. Its frustrating and a mystery to me!

I hope you start to feel better soon JP

Much love

Gez~

Hi,

I just feel the need to step in here and tell you that the symptoms of CFIDS and perimenopause can indeed be the same!

I have had the CRUSHING fatigue - just lying my head on the table during dinner, for example, too weary to pick up the fork. Yet I have more and more days lately with good energy. It fluctuates, up and down.

It's well worth pursuing a diagnosis of CFIDS (also associated with Fibromyalgia - some people think they are the same condition), but do leave some room for the possibility that these symptoms, as HORRID as they are, are going to resolve one day when your hormones settle.

Dr. Elizabeth Vliet's book "Screaming to be Heard" really helped me to understand how hormones are associated with virtually every system in our bodies, and can cause some of these VERY challenging symptoms. She has been a guest here at P-S, and you might check out her transcript.

Please don't be discouraged by how poorly you feel. I too have had the thought: "I AM DYING." For YEARS now this has popped up occasionally, but I'm still here!


We're all together in this!

Jacquie

Gez

From what I understand a sed rate is how fast or slow the red blood cells settle in the test tube. If the rate is increased, it means there is some type of infection and or inflammation in the body. I don't remember what the rate was, but it was 10 times higher than it should have been. As for the elevated liver enzymes, that was explained to mean some type of virus. When that came back as elevated they tested for hepatitis but that was negative. They also checked other liver tests and they all were normal. It was also told to me that people with mono have high liver enzymes. My son had mono his first year in college and his enzymes were high for a year after that. I am going to insist he repeat the blood work he did in November to look for changes. Something has got to be causing this severe never ending fatigue. It could be hormonal. In fact, I am hoping that it is, but I never seem to have any relief from it. I would just like someone to at least try and give me some answer. As far as I know, my liver is otherwise just fine. Thanks for the post and thanks Jp for your input too!

Kim

Jacquie

Thanks, I will definately check out that transcript. I need all the encouragement and information I can get at this point. I Had hope that this would start to resolve itself and I would feel a little better, but so far it seems to be getting worse. I wish there was a pill for fatigue. My son is a chemistry major. Maybe he can make one up in the lab!

Kim

Jacquie,

I really, really hope you are right and all I am going though is related to PM. It is still so hard for me to believe there could be other women out there as incapacitated as me. I haven' t worked, cooked dinner, cleaned house etc. for almost 6months now. OK, I guess I have done some house stuff, but it kills me. I get out of bed in the morning and all I can think about is when I can crawl back in. In between, I think about all the strange physical things that are happening to me and trying to decide what kind of doctor to see next. Then there is the guilt that I am missing my kids lives since my husband is having to do so much without me. Part of me thinks if I could tolerate an Antidepressant, it would help me a ton, but when I tried, they made me crazier. Anyway, keep up the encouraging posts for people like me wallowing in self pity....
I've nearly made it through another day...I guess that' s good.
JP

JP

I just wanted to add that when all this started, my doctor had me try a estrogen patch and progesterone pill. I stayed with it for three weeks and it did Nothing. He decided to have me stop them since I had no other symptoms. I guess that is why I am wondering if it is hormonal and if the HRT should have helped. I am hoping it is because then I have some hope of things getting better sometime. Just wanted to let you know that.

Hugs
Kim

Hey Kim,

Did you have any side effects from the hormones? I had a big headache last night. I talked to a friend of a friend last night that was really encouraging. She had CFS years ago after her second baby. She said the things that helped her most were getting outside everyday, accepting that she was sick and letting herself rest and finding the right anti depressant. She was sick for about 10 months. So maybe I gave up on the AD's too soon. I don't know.... The ativan makes me feel better, but not myself...I just want me back! I didn't sleep again last night and I know that its crucial to get that worked out. Going back to my Internist today, so we'll see. I have numbness in my arm today with the twitches....do you get that?
xoxo Jill

Hi Jill

The only side effect I had from the hormones was weight gain. I gained about 7 pounds in the three weeks I was on them. I probably would have gained more if I had stayed on them. To be honest, I would have if it had helped with the fatigue. I think you get to a point where you will do whatever it takes and I was willing to take them. I can't get in to see my doctor for a couple of weeks. He is only in the office three days a week so it is sometimes hard to get in there. Do you feel fatigued the minute you get up in the morning? Within a half hour I am feeling it even if I have slept. I have been taking half of ambien and it has helped me sleep. Even if I have 7 hours I still wake up with the fatigue. I don't get numbness with the twitches. Sometimes if it has really been twitching badly, my leg will start to hurt. It also hurts if I try and massage the muscle. I don't know if my doctor will prescribe AD's or not. It is something we will have to talk about again. I did some reading last night and found where it said CFS can be brought on by disturbances in the hormonal system. Interesting. Keep me posted on what is going on and I will keep in touch also. Take care

Hugs XO
Kim

Hi there!

I've been writing to people on this Web site for a couple of months regarding fatigue.

My GYN thought it must be CFS, but when I went to my regular M.D., he said I don't have all the symptoms and just looked at me like I was crazy. I don't have a fever, swollen glands, sore throat and trouble concentrating. I do, however, have very tired and sore muscles and spent half of last year in bed. I take medication for depression and anxiety, and was also on HRT (a patch) for two years. Since I've stopped the patch (the progesterone was too strong and contributing to the fatigue) and cut back on the anti-anxiety medication, I am more alert during the day, but still cannot do anything aerobic. I've stopped all activities (including cleaning house, which I hire someone to do) and even have difficulty shopping for food and doing just normal, everyday stuff. My sister had the same problem--it lasted for several years. She keeps reassuring me that it will get better.

This is awful stuff. I feel almost totally incapacitated. I have a low-stress job, which is great, but no husband to help. I eat well, get lots of rest and really try to take care of myself. But the peri-m symptoms symptoms persist, especially the muscle fatigue. I know how you feel. You are not alone. The crashing fatigue can be simply perimenopause. IT IS NOT NECESSARILY CFS.

All the best,
Libbett

Hey Libbett

Here we go again on my favorite subject-FATIGUE. I have done tons of reading on CFS. I have found many articles that say if you have debilitating fatigue for more than six months, you don't need to have the other symptoms to be diagnosed with it. I have printed a whole bunch of reading to give to my GP since I am not sure he is really well informed on this subject. I think the reason my GP thinks I have it is because of the virus I had in November when all this happened. I will let you know on Monday how it all turns out. I am Really hoping it is just hormonal. I do not want to be dignosed with CFS, but I am having a extremely tough time working and in order to have my hours cut, and keep my job I think I will need to have that. I also have a terrible time just out shopping. It really depletes what energy I have so that I must rest afterwards. Every task is difficult and when people ask me to go out or do things I feel terrible I can't and no one understands how terrible this fatigue is affecting my life. You sound just like me and it is comforting to know others are dealing with this. Keep in touch and I will post on Monday after my appointment. Hope you can enjoy the weekend. We are finally having some great weather in NH.

Kim

Hi Guys,

I had another "dip" with fatigue this week, not terrible, but definitely noticeable. I managed to mow the front lawn this afternoon, and came in a little discouraged given that 2 years ago, I could stack 5 cords of wood each spring, and then do all lawn care over the course of the summer, while still doing all my housework, etc. So far this year, my back yard has not been mowed once, and it's June 3rd!

It's definitely a matter of riding the waves for awhile - not easy for former Type A's! I believe we will regain energy when this meno crap is over!

""""""" I don't get numbness with the twitches. Sometimes if it has really been twitching badly, my leg will start to hurt. It also hurts if I try and massage the muscle. I don't know if my doctor will prescribe AD's or not. It is something we will have to talk about again."""""""""""""

(Sorry, computer illiterate, can't figure out how to hi-lite quote!)


I have RLS (restless leg syndrome) They have figured out what to call it, but not how to treat it.
It is exactly what you have described, a tenseness that can only be relieved by twitching, an ache that doesn't go away unless you move the offending appendage
I have had to deal with this for about 15 years, and my best advice is hot baths. (add candles and wine and make an evening of it)
Clonazepam will work if you take it before going to bed.
Aspirin also works (Tylenol and Advil don't seem to help as much)
There have been times where I have taken three baths to get through the night, but at least between, I get some sleep.

These days, any sleep I can get is wonderful, and I begrudge it more when my stupid legs keep me up.
It seems that the restless legs kick in just about 30 seconds after I have finally gotten to sleep.
Fortunately, I have a honey who hugs me and runs the bath as I lie there crying in frustration.
Best of luck!

Hi Kim!

I don't think doctors really know everything about CFS or perimenopause. If you are not having the other symptoms of CFS, I don't think you have it. As I said before, my sister went through this, without taking any medication or HRT, for several years and now says she can't believe how much better she feels. I don't think it's a coincidence that I am having similar symptoms. My doctors don't believe I have CFS but are stumped as to what I do have. I can tell them and anyone else out there with "change of life" fatigue--ITS PERIMENOPAUSE!!!! Most women in perimenopause have fatigue to a certain degree. We just seem to be the unlucky ones who have a severe case of it.

Hang in there. I want to encourage you in case you get a diagnosis of CFS. Crippling fatigue can be a symptom of perimenopause. There was another Web site I visited for a while last year (I don't think it's still there). I printed out a discussion on fatigue, and there were several women having the same symptoms that we do. The final analysis was that you have to cut back on activities and take care of yourself until it goes away. These women had the fatigue for more than a year. Some were still having it. But they did not have CFS.

Look forward to hearing from you,

All my support,
Libbett

Hi Libbett

I just sent you a PM. I honestly don't think I will get a diagnosis of CFS. My doctor said that when you are diagnosed with that, it is because there is no other reason for the fatigue. When I first came on this site, there wasn't much mention of this debilitating fatigue. Most of the posts were all about the other symptoms. I was beginning to wonder if I was on the right site for my problem. It is great to be getting some encouragement and support right now. I am having a very difficult time dealing with this. I think I am more worried what other people think because I basically can't deal with any thing other than the necessary everyday things and even that is becoming impossible. I just feel very fortunate that my sons are both away and basically on their own. I don't know how I could do all those things I use to do when they were living at home. Thank you so much for the encouragement. Somedays I feel like I want to go to a hospital and stay until they help me, but I know there is nothing they can do. I will let you know how everything turns out. Keep in touch and Take care too.

Kim

Hey Kim, my New England Bud,

I'm sorry you're still fighting this awful fatigue. It would be so nice, wouldn't it, if we could just check ourselves in somewhere until we get help, or until this is just naturally over?

Didn't one of our P-S sisters recently say something about a menopausal retreat? That would be HEAVEN.

Take heart, dear Kim. You will feel better one day.



Jacquie

Hi Jacquie

I could use a retreat right about now. This awful fatigue is starting to wear me down. My doctor has no idea what the cause is and still hasn't mentioned it having to do with peri. I would even take a good day once in a while it has been so long. My entire body is just consumed with fatigue. Having more blood work tomorrow. When it all started I never would have thought I would still be having it seven months later. I would take about anything right now if it would help.

Thank you so much for the encouragment.. I really need it right now. At least our weather in NH seems more like spring. The sunshine does help the spirits!

Kim

Hello
I have to push myself to do things.
My doctor told me to do things when i feel like it!
Sure! Its so easy for her to say that.
Thinking of hiring a maid! My house needs a good
cleaning!

Angel

Hi Kim!

My doctors wanted to rule everything out (rheumatoid arthritis, fibromyalgia, CFS, a neurological disorder, and all the rest) before making a diagnosis. Honestly, I think they are so afraid of missing something major and getting sued, they refuse to accept that its peri-m fatigue. Neither the GYN nor MD has actually acknowledged that my fatigue is hormone-related.

I can relate to the fellow sufferer who said she felt she was dying. My sister called me once when she was in the middle of this and said, "I don't want to worry you, but my heart is just going to stop soon. I'm so very tired." Now she can do almost anything.

I was supposed to travel in a couple of weeks, bought the ticket and everything, and had to cancel. There's no way I can pack, get in the car, drive to the airport and go through the hassle of checking in and security and finally arriving at my destination without being totally exhausted!!!! No more travel for me until I feel better.

Isn't this the absolute pits?

I see myself as being in a cocoon. At some point, I will emerge as a beautiful, energetic butterfly.

Hugs and hope,
Libbett

Hey Libbett-

Just sent you a long PM...It might take you days to read it!

Hugs
Kim

Hi Kim,

Have been reading the entries on fatigue and wanted to chime in. I have thyroid disease (Hashimoto's Thyroiditis, an autoimmune disease) and my guess is that your doc has already run the labs on that...but, and this is similar to CFS, I had to suffer the thyroid symptoms for 4 YEARS before it finally showed up in my labs. By then I was half-dead, no kidding. I would sleep 12+ hours a day, and 3-4 hours after waking up I would be in desperate need for a 2 hour nap, etc. I also felt fuzzy brained at times and had difficulty concentrating, weight loss (many people have weight gain), and other symptoms. My sister likewise had all the symptoms for several years and I even told her "if it's not showing up in your labwork, then you're probably going to have to feel half-dead by the time it does" and sure enough a couple of months ago, after two or more years of exhaustion and the docs telling her she didn't have it, her labwork finally showed a thyroid problem.

With CFS it is different in that I don't think the medical community has a definite thing they can point to and say "Aha, you've got CFS". It seems to be more along the lines of "Well, we've run all the tests and can't find anything, but your symptoms sound a lot like what we label CFS, so for now we're going to call it that".

I do believe there is a link to all of the autoimmune diseases such as Hashimoto's and Lupus and Fibromyalgia, etc., that seem to share many symptoms. Perhaps eventually CFS will become a more definite diagnosis. In the meantime, arm yourself with as much information you can (of course, Hashimoto's sufferers have limited short-term memory!). Also, you might consider making the trek to Boston for a more up to date physician. I can't tell you how many docs I've had here in NH and of some of them I have truly thought "Why didn't I go to med school?".

Don't give up the fight...we're pulling for you!

Hi Eulogia

It was great to hear from you. I need alot of support right now and am always looking for more input from others. It will be interesting to see how the blood work turns out. He was thinking thyroid but said I really didn't have the other symptoms. I have lost 5 pounds since March but I think that is just because I am too tired to eat most of the time. My doctor did say that CFS is kind of like a diagnosis dumping ground. When they can't find anything wrong after all the testing etc. that is what they diagnose you with. It is now a recognizable disease and you can actually get medical disability if you become too disabled to work. I think having my hours at work cut, will help me tremendously with the stress. My boss was great and now I can just concentrate on trying to feel better. There are times when I feel like my entire body is just throbbing with fatigue, especially when I have been too active. Those are the times when I feel like I need a hospital. I also have totally unrefreshed sleep no matter how long I have slept. He said that is a classic symptom of CFS. To be honest with you, if all my blood work shows up alright, I will be fine with that. Even if he doesn't diagnose me with CFS, it doesn't matter. I was worried that something else terrible was going on and to be sure it isn't, will make me feel better. I see my neuro in a week, and see what he can come up with. I do feel the doctor has done what should be done-he is repeating all the blood work he did in November and since Fatigue is the only symptom I have then I will have to trust him.. Unless something else comes up and I start to feel worse (I don't know how I could) then I will look into finding someone else. My neuro is a very smart guy and I can't wait to see what he thinks of all this. The other strange thing is when I get so tired I just have to lie down, I don't sleep. I just lie there in a state of utter fatigue. It is like I just have to rest but not actually sleep. I have terrible insominia also which I take ambien for or else I would lie there for hours. Strange.. I can be so exhausted and not be able to fall asleep. Thank you for all your input, it is much appreciated. I also have Crohn's disease so that probably doesn't help the whole situation. Take care and keep in touch as I will also

Kim

Hi Ladies,

Well, I'm back to being experimented on. I started a drug called Zyprexa which is an antipsychotic...that makes me feel good...NOT. Anyway I've been on it for several days and i think it may be helping with the anxiety and depression. I am really tired...but that is probably a side effect of the drug. Some good news for me and the twitchers is that the psychiatrist I went to assured me that he sees a ton of people with muscle stuff and it can all be related to anxiety and depression. I really hate being on any medication, so this woozy feeling I have is bugging me. On the other hand, I haven't had a crying fit in several days and I am more optimistic about getting better. I truly believe this is all hormonal...I just hope it ends soon..for all of us!

Hanging in there as best I can...
JP

Hi JP

I had more blood work done yesterday. I won't know the results until next week, but am fairly sure it will all be normal. We talked about CFS a little bit. He is reluctant to diagnose me with that but has no other ideas on what it could be. He never mentioned hormonal so I brought it up and he said well maybe it is. He said he is going to do some research on CFS and try to come up with some possible treatments for the fatigue. I have no idea what he could find, but hey I am willing to try just about anything at this point. He wants me to have a MRI on my brain now. My neuro will have to order that. My left calf now is much smaller than my right and that concerns him. I said that it is twitching at least 500 times a day and no wonder it is shrinking. Will let you know what happens on Monday, that is when I see my GP again. Like I said, if there was a pill for fatigue, I would take it. I don't like to take medications either, but I need something to work for me. Good Luck and I hope you feel better soon. I have cut my hours at work so that will relieve some of the stress for me. Keep in touch, I am thinking of you...

Kim

Hi JP!

I've been on medication for depression/anxiety since 1990. My symptoms were totally under control until peri-m hit. Then the moods swings spiked and I was so anxious and depressed I actually shouted, teary-eyed and voice trembling, to a man with whom I am only slightly acquainted, "My life is wretched right now." He got away from me as quickly as he could.

Still battling muscle fatigue and general fatigue. Everything I do is an effort.

Take care,
Libbett

I have had CFS and Fibro for the past 11 years. Although there is overlap in the peri and CFS symptoms, the CFS symptoms are pretty clear. You aren't just fatigued or exhausted you have NO body energy to move. You sleep 20 plus hours a day for weeks and months on end, and have the CDC list and then some of other symptoms that must be present before you get the CFS diagnoses.

Trust me, CFS is hellish. It destroys your immune system, damages your brain, messes with your hormones, gives you unbearable IBS problems, and basically just takes your life away from you. You walk around like a zombie, can't think, get lost in your own town, get strange depressions and anxiety attacks, have muscle pain so bad that many wind up in wheelchairs and on heavy duty narcotics.

I think there is a list of 20 symptoms out there and you need at least have to meet the criteria for CFS. It is a dumping ground diagnosis but when you have the real, full blown CFS, trust me, it is real and your life is changed in ways you can't imagine. Now there is a diagnosis of Chronic Fatigue, which means you are constantly exhausted due to reasons unknown, but that is different from Chronic Fatigue/Immune Dysfunction. Way different.

Far more of the people have Fibro but that's because the folks with CFS in the early years are too busy sleeping 20 to 22 hours a day and couldn't sit up at a computer and read and write if you put the gun to their head. I know, I was at that point for the first three miserable, god-awful years.

I wouldn't wish CFS on anyone. The damage it does throughout the entire body is unbelieveable and they have minimal drugs to treat the symptoms, no cure, no real tests YET.

Bless you.

You have a very hands-on, proactive attitude, which no doubt helps you handle this awful condition. Thanks for sharing your knowledge.

Wishing you well, dear (((MUFFIN))).


Jacquie

JP

Tried to send you a PM but can't because I think it said your folders are full. I will try later on. Empty them out so I can send it OK?

Kim XO