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Power Surge Forums > Board Discussions > Your Skin: Dryness, Itching, Vaginal Dryness, Disorders, Discomfort
robertls
Just diagnosed with vestibulitis. Do I have any vestibulitis "sisters" out there? It took me 9 mths to get it diagnosed. Do you have any tips for living through this. I would appreciate any help. Thanks
raeh
What is vestibulitus?ohmy.gif
MaryO
QUOTE
Originally posted by raeh What is vestibulitus?ohmy.gif
Vestibulitis is a condition which causes redness and pain of the vestibule (the area around the opening) of the vaginal area. It's actually an inflammation of this skin and the mucous secreting glands found in the skin.
robertls
Thanks Mary O......thats exactly what it is even tho I have been treated repeatedly for everything else by 5 other drs. that should have known this condition since they are gynos but I guess it isn't unusual. I asked for a vulvovaginal expert in Philly from these boards and someone gave me Susan Kellogg-Spadt from Graduate Hospital. I highly recommend her. She said women she sees have lived with this for years and have gone to dozens of Drs. I did send info to all those gynos. Hope they study up on it.
MaryO
A few months ago, Dearest has as her guest in Power Surge Elizabeth G. Stewart, M.D. Dr Stewart wrote a book that appears to be just what you might need: The V Book: A Doctor's Guide To Complete Vulvovaginal Health The transcript of this chat would also be helpful to you. It's in the Power Surge Transcript Library. Here's what Dearest said in her introduction of Dr Stewart:
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My guest tonight is Elizabeth G. Stewart, M.D. Dr. Stewart is a gynecologist and Director of the Stewart-Forbes Vulvovaginal Specialty Service at Harvard Vanguard Medical Associates. Dr. Stewart is also Assistant Professor of Obstetrics and Gynecology at Harvard Medical School and a member of Brigham and Women's Hospital staff.   Dr. Stewart's perspectives as a full-time vulvovaginal practitioner, researcher, speaker and teacher shape her prominence as one of the leading voices advocating the importance of her specialty. Author of The V Book: A Doctor's Guide To Complete Vulvovaginal Health, she's compiled complete coverage of the facts about the healthy vulva, vagina and vestibule. Dr. Stewart discusses "that part" of your body. "Vagina is hardly a household word," says Dr. Stewart.   "The V Book" was written because "so many women are unfamiliar with their bodies," the book contains information about everything: yeast infections, bacterial vaginosis, bladder inflammation, vaginitis and skin disorders, your genitalia, urinary and bladder infections, interstitial cystitis, vaginitis, trichomonas, atrophic vagnitis and strep vaginitis, vulvar pain, and vestibulodynia (pain in the vestibule) and painful intercourse. "The V Book" is not a gynecological sourcebook, but was written for the average woman who wants and needs to know more about vulvovaginal or V health.
robertls
I highly recommend that book and its pages are well worn when I was trying to diagnose myself. She has a great section on vestibulitis. I even called her office for a referral to a spc. in Philly. They were very helpful and kind. Something we should all remember....Susan Kellogg Spadt was very impressed with my diligence in finding out what was wrong with me and not just accepting my 5 doctors guesses. We have to fight for ourselves when the gynocologist or Drs don't keep up with studying conditions that are not ordinary.
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