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DebraD
Hi friends, Sorry to burden all of you again with another symptom on my long laundry list of crap. I have had Raynauds for several years. I had no idea what it was and when the weather would change from Hot to cold or if I walked into air conditioning out of the heat my fingers and toes would literally get numb, blue/red and tingle like they were asleep. This would last for long spans of time and it never really became an issue, just a bother,. I remember a Doctor I worked for told me that she had it too and to keep an eye on it because it could signal an autoimmune disorder. Well, for the past few years starting in 2005, I had the hot flashes, sweats and drenching mostly in the morning after a shower, no matter how cold it was and before my period I would wake up drenched. I found the PS site and figured out that I was having hot flashes. During that time, I was warm all of the time and did not go through that freezing thing that I had for so many years that would trigger a Raynauds attack. In fact, while having these hot flashes, I enjoyed not having the numbness and tingling and pain all throughout the day. The past 6 months, I rarely get those hot flashes, I have no idea what has changed but I am now getting the Raynauds so bad that my hands are staying numb and tingly like they feel asleep. It is of course, making me have anxiety. Does anyone here have Raynauds and I know its a circulatory problem, but I was a top notch athlete and still had it. What treatment helps anyone here. What do any of you know about this syndrome. Does it get worse? Thanks for listening..............xo Debra
stitchnanny
I also have Raynaud's. To be completely truthful, there is not a lot out there that helps. I wear think socks when I get an attack except in summer. I wear gloves all of the fall and winter months - the kind that cover everything except the the tops of the fingers. Sometimes my attacks are so strong that I can not feel anything therefore cannot function until I put my hands under scalding water. I have burned myself this way before, try not to be so stupid again.

I have a heated mattress cover that is so wonderful especially during the winter months. Anyway, I wish I had more for you but I do know that things are being created all the time to help with this syndrome. Try googling Raynauds and stuff to help dealing with it. You may be able to find some other things that will help you.

Hugs to you,
Jeaninne
DebraD
QUOTE (stitchnanny @ Aug 8 2009, 08:29 PM) *
I also have Raynaud's. To be completely truthful, there is not a lot out there that helps. I wear think socks when I get an attack except in summer. I wear gloves all of the fall and winter months - the kind that cover everything except the the tops of the fingers. Sometimes my attacks are so strong that I can not feel anything therefore cannot function until I put my hands under scalding water. I have burned myself this way before, try not to be so stupid again.

I have a heated mattress cover that is so wonderful especially during the winter months. Anyway, I wish I had more for you but I do know that things are being created all the time to help with this syndrome. Try googling Raynauds and stuff to help dealing with it. You may be able to find some other things that will help you.

Hugs to you,
Jeaninne


Oh Jeaninne, I am sorry you have it bad too. It's the pits. I have also burnt my hands running them under hot water...lol....I usually get into a scalding hot tub when its really bad. I can feel the chills right now thinking about it because it feels so good to get my extremities heated up to where I can actually have feeling in my hands and toes. I dont' know of anyone in my family who has this. I was going to google it but that always sends me into troubled waters anymore. I tend to focus on the crazy worst remote bad thing that could happen....then I lay awake thinking about the worst case scenario. I pray my kids never turn out like me.........lol Debra
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