Has anyone undergone a hyst for suspected adeno?I am in a no mans land right now where I an having tons of pain that sometimes appears to be back pain and sometimes bowel pain. The pain is really taking away my quality of life. I had a colonoscopy AND THEY FOUND DIVERTICULOSIS BUT THEY SAID THAT THE PAIN i am describing really should not be casued by that because there was no inflammation. i saw my gyn and they did a sono saw cysts on l ovary , pain was originally on l side m, he asked me to come back in a month if pain persisted so I DID AND THEY DID AN MRI OF UTERUS as my uterus is squishy and he feels that probably have adeno and as the pain is getting worse every day he feels if on my followup with the gi people if they do not come up with anything he feels that it is quite likely the pain is adeno. i have never heard of wonen having terriblepain casued by adeno really and an curious as to if this is possible.I am at my wits end with this pain and am more then willing to have everything yanked out if I knew for sure that this was the cause but there is no guarentee. I am tired of serching the internet to find out what this pain might be and truthfully the docs are no real help. My gyn is probably the most helpful the gi people and my pcp just look at me like I AM CRAZY WHEN i describe the pain becasue they seem to think the pain should be in one place all the time not in my back and then in my pelvic area then on the right and then on the left.Anythoughts? My gyn doubts endo as I AM 46 AND HAVE NEVR HADPROBLMS BEFORE EXCEPT EXTREMELY painfulperiods. i ALSO HAD BLEEDING and had an ablation and d and c last JUNE FOR POLYPS ..NO BLEEDING SINCE AND i have to say the two days post ablation I HAD ABSOLUTELY NO PAIN WHAT SO EVER FOR THE FIRST TIME IN A LONG TIME..BUT THE PAIN CAME BACK.

I had a hysterectomy but was unaware of why or what endometriosis was. It was an emergency. Several days later a nurse told me I had PID. But the pain never really went away. It got better for a while but lately much worse esp down my right side gut back but leg, yikes. I need to lay down alot, which use to make the pain go but no longer. The docs I have been to were not familiar with endo and had no clue what could be causing me pain. From all the info online, it is wquite clear that endo is what ails me and the pain is intense.

Two years ago I had a total hysterectomy because of adenomyosis (sp) and endometriosis.  I had severe back pain and lower abdominal pain, especially during the two weeks surrounding my period.  I also had diverticulosis and uterine fibroids.  The pain I felt radiated along my lower back.  It also extended into my thighs and at times alternated between my lower right and left abdomin. While the diverticulits causes lower right quadrant pain, the level of pain I felt and the fact that it radiated down my back into my thighs and was worse during the two weeks surrounding my period enabled me to separate the pain of the enometriosis and adenomyosis from the diverticulitis.  Prior to my hysterectomy, my GYN informed me that he could not guarantee that my lower back pain would subside after the surgery.  He was right.  I still have lower back pain, but it is not as severe as it was prior to the surgery.  Due to the removal of my ovaries, I have spent the past two years trying to balance my hormones.  There are times when I wish I had not had the surgery; however, due to the condition of my ovaries and uterus and a long cancer history in my family, I know it was necessary.  While I haven't felt the severe physical pain I felt before the hysterectomy, the emotional and physical discomfort caused by the hormonal fluctuations are at times more problematic--of course, at least now I don't have to worry about uterine cancer.   Of course, being 43 at the time of my surgery, I was thrown into severe surgical menopause.  Luckily, I had put the surgery off for five years.  Since the surgery, I have tried three different hormone regimines.  Currently I am taking Bi-est and progesterone cream, and they seem to be working well.  All in all, if I were you, I would research the surgery and the different alternative approaches to endometriosis and adenomyosis.  I did.  The information I gained helped me to make an informed decision.  There are many good sites on the internet.   I hope all goes well for you.

I suffered with endometriosis off and on for three years before I finally consented to a complete hyst. A wonderful "specialist" (endocrinologist) dismissed me with a prescription for Vioxx and sent me on my way althought I was disabled at the time with the pain. Only after the uterus was biopsied did my current doctor diagnosis adenomyosis, which from my reading goes along with endo a lot. As some  other ladies posted here, surgical menopause at age 39 has been no picnic, but at least I am not disabled with pain. I just blame all my moodiness and other health problems on being a "menobabe"!

I thought Vioxx was supposted to be for arthritis pain.  I wonder why your endocrinologist prescribed it this way.  Did it help you at all?

That's what I thought, too, MaryO. He did not think it was the endo causing my pain--asked if anyone had ever discussed with me myofascial pain. I wonder why he didnt send me on to a specialist for that when I said no. He didn't refer me or discuss other possibilities to explain the terrible pain I was in--he prescribed Vioxx and Aygestin, a synthetic progesterone I had already tried--it didn't help the pain much and helped make me a complete emotional wreck. The men with white coats would have already come for me if I hadnt gone to another doctor.