I'm about 5 years post and I've been suffering through a flare of symptoms for nine or ten months, compounded by a summer of stress. While I hoped I'd be better by now, sometimes I feel like I'm getting worse. Please reassure me that these are symptoms others have experienced, especially several years post:
Hot flashes, sometimes cold flashes, chest tightening and difficulty taking a deep breath especially at 6:30 every evening, back pain, insomnia, waking up in middle of night with muscles twitching, muscle twitching during the day, and ringing in ears.
I don't take anything. I was put on Paxil and Ativan this summer - both made me very nauseous. All the stomach meds gave me anxiety. Now, I'm afraid to take ANYTHING - no vitamins anymore, won't try L-theanine (although my chiropractor recommended it), afraid to try magnesium. No more doctors either - had loads of visits and tests this summer - only outcome was that I felt worse.
At the beginning of this I was pro-active about getting better and thrilled at any signs of improvement. WHen I had a good day, I was so excited! Now I feel as though I've given up, and instead I'm resigning myself to living like this for the years that remain. I'm so discouraged.
Hope everyone has a better day than I'll probably have.
Thanks,
Helen