hystersister
May 2 2001, 08:50 PM
Its been 4 years now since my hysterectomy and I cannot seem to get back on my feet emotionaly or physically. Now I don't necessarily mean that I am depressed but I just don't feel the same. I reading a lot about the natural progesterone creams recommended by Dr. John Lee. Can these work for those of us that have been surgically castrated?
Framboise
May 2 2001, 11:14 PM
As someone who is a couple years post a hyst now, I can say that yes, you should be able to feel better than you describe.
I know that my experience has been that I feel much better, way better, on a combination of the 3 hormones my ovaries used to make than I did on estrogen alone. While I did the typical routine of feeling off the first few weeks after starting the progesterone, once I adapted to it, I felt as though I'd given my body what it was looking for. Ditto when I started the testosterone (which does a lot more for me than just libido, although that's nice too). I don't think this is the forum for a big discussion of hormones, but I do think that part of recovering from a hyst is providing ALL of what you've lost to the surgery. If your own body makes enough (as some women do progesterone and testosterone), then fine. If not--and you sound a lot like the "not," then it's surely worth looking into further.
The thing I would caution you about is that Lee's book is written for natural meno, not really surgical. Some of his suggestions, such as going it on progesterone alone, tend not to work out for women in surgical meno.
More about hrt for women in surgical meno is at a website referenced in my profile.
Sally
May 3 2001, 04:07 PM
Hello,I had a hysterectomy 11 years ago and I have been using progesterone cream for 4 years with great success.I do not use HRT, only herbal products.Just because you have had a hysterectomy does not mean that you can not use products.Byeeeee Sally
Maniac
May 4 2001, 10:41 AM
QUOTE
Quote: from Framboise on 12:14 am on May 3, 2001[br]As someone who is a couple years post a hyst now, I can say that yes, you should be able to feel better than you describe.
I know that my experience has been that I feel much better, way better, on a combination of the 3 hormones my ovaries used to make than I did on estrogen alone. While I did the typical routine of feeling off the first few weeks after starting the progesterone, once I adapted to it, I felt as though I'd given my body what it was looking for. Ditto when I started the testosterone (which does a lot more for me than just libido, although that's nice too). I don't think this is the forum for a big discussion of hormones, but I do think that part of recovering from a hyst is providing ALL of what you've lost to the surgery. If your own body makes enough (as some women do progesterone and testosterone), then fine. If not--and you sound a lot like the "not," then it's surely worth looking into further.
The thing I would caution you about is that Lee's book is written for natural meno, not really surgical. Some of his suggestions, such as going it on progesterone alone, tend not to work out for women in surgical meno.
More about hrt for women in surgical meno is at a website referenced in my profile.
I'm so glad to hear you say that about Dr. Lee's book! I thought it was just me. (I too, am a surgical menopauser. I have nothing left in there.) I kept trying to find answers to my questions, but they just weren't there. I think you're right - the book is mainly for those who "float" into menopause, rather than going into it surgically. I tried the progesterone cream, but it did absolutey nothing for me. My doc also told me I was waisting my time using it, because I didn't have a uterus..?? It's a good book, and very informative - it just didn't have some of the answers I was looking for.
Framboise
May 5 2001, 11:56 PM
Ummm...the no uterus/don't need progest premise is old hat. There's plenty more that this stuff does in our bodies. Some women post-hyst make all they need with the adrenal glands; others need to supplement.
But in surgical meno, progesterone doesn't seem to be the whole story for most women. I won't say all, because there are a few who make enough (belly fat) and take in enough (xenoestrogens) to more or less meet their needs. But I don't think that's most of us.
I do a lot of reading on surgical meno and what women are using and how they feel (I have learned and continue to learn a lot from my fellow travelers along that particular path)...and generally speaking, that's a little different from what women in natural meno are needing. Even postmenopausal ovaries provide a buffer that we lack. There just isn't a book written about us specifically. That's why the online forums remain so valuable for us: we're each other's best resouces.
musey
May 14 2001, 12:28 PM
ok call me clueless.......im 1 week post -op and im reading ur messages about creams. is this something that i should be investigating?? do all woman going thru surg-menapause need this?? what is it, where do u put it (smile, im blonde some days) and what does this cream do??
i feel like a kindergartener again, someone needs to teach me the ropes lol, feel free to email me, the whole issue of hysterectomies has me in a tail spin, i have no idea what im in for i suppose. all information would be greatly appreciated.
thanks, musey
Framboise
May 15 2001, 01:29 PM
Hey, Musey--we were all beginners at this once. I had helping hands to point out some of the way for me, and did a lot of research and talked to a lot of women, and now that help rolls along (I know you've found the website I referenced). Don't worry--you have time to learn about your redesigned body and what works best for it. The first 3-6 months after a hyst are the time when you really do your learning and exploration--before the op you were too focused on that to be able to look ahead. And the thing to remember about hormones is that if you don't like one, there's lots of others out there. Nothing is fixed, so you can always change things around (it's kind of like chemically redecorating your body). And we're on a rising tide of useful research, so what we have to work with today may be totally revised (and, one can always hope, improved) tomorrow. Just keep reading, keep asking questions. You can do this.
Framboise
Yvonne M
Jul 2 2001, 08:26 AM
Dear hystersister,"surgically castrated"! Hysterectomy, is a whole new ball game. (pardon the pun). Initially, I too felt a disconnection with my inner self, your inner balance is changed and there are feelings of loss that are hard to comprehend, try to gather as much information as you can. A women's health practitioner can investigate the state of your hormones, which has a great impact on the way you feel regardless of whether or not you have retained your ovaries. Regards..
debrikkia
Mar 22 2002, 06:07 PM
I see that no one has posted on this topic for quite some time. I would very much like to here from some of you PS women that have had hysterectomies. I had one 12 years ago, and for most of those years, had a terrible time trying to find a "program" that worked to keep down symptoms. I'd like to hear how some of the rest of you post-hyster sisters have dealt with this, and what you've found that helped. I'm currently taking Biest, and am doing better than I have using anything else. However, I don't intend to use it forever--seems like after 12 years I shouldn't need anything!! At the time of my hysterectomy, my GYN put me on estrogen, and just said I'd have to take it forever--he never said there were any other options, and I didn't know better back then.Anyway, I'd appreciate any who would care to share their adventures with me!! :oDebbi
LYNCHMOB
Mar 25 2002, 12:33 PM
I am a hysterectomy survivor that has learned to live one day at a time with my symptoms! I take Estrace and some natural progesterone cream for hormone replacement. I think the main thing that has helped me is to try to live as healthy as I know how--yeah, all the things I already knew but just failed to put in practice--regular exercise, good diet, proper rest, time with friends and family and some quiet time alone. Some days I have a "meno" day where I just don't seem to handle my symptoms well. On those days I try to not take it too hard, laugh it off and think that tomorrow is any better and it usually is. I have come to realize I am responsible for my own health and it is time I quit sticking my head in the sand and take my health seriously. I know to take my health for granted was never really an option, but that is what I did! Too, I have tried to eduate myself about menopause--ask questions, read all I can, etc. Then when I have a symptom that is new to me, such as palpitations, I don't get as anxious about it. I think "Okay, another meno symptom!", try to laugh it off and go on. I have found that not fretting too much about how I feel at any given time loosens has actually lessened the intensity of them, whereas when I got uptight about them, it actually made me worse. So I am still in this learning process, and at 39 with most everyone in my age bracket not experiencing it yet and many in denial that they are even approaching midlife, I find I must be my own advocate. And one day when they experience meno symptoms for the first time and describe them to me, I will be able to say I understand how that feels!
debrikkia
Mar 25 2002, 02:39 PM
Lynch,Thanks for sharing with me. I was also 39 when I had my hysterectomy, and was the only one my age going through menopause. Unfortunately, as I mentioned, I had absolutely NO information on what to expect. My doctor told me that I would feel great, and that I should never have to experience any symptoms as long as we kept my hormones balanced. Boy was he wrong! The first 2 years after the hyster, I was in a terrible depression, but still did not know it was a meno issue. It got to the point where I would come home from work, and go straight into the bedroom and just stay there! Then I finally talked to my GYN about it and he changed my hormones. I got better for a while. Not once, was there ever any mention of using progesterone or testosterone--just different types of estrogen.Power Surge has been my biggest source for information--both from all the sharing on the boards, and from the wealth of information offered elsewhere on the site. We are fortunate to have it! Thanks again for sharing--It certainly helps to know we are all in this together, doesn't it? Much luck to you--sounds like you've got it pretty well under control most of the time. Good for you!!Debbi
LYNCHMOB
Mar 25 2002, 05:38 PM
Debbi, I, too, went into a deep depression about six months after my surgery. The fact that I was closing the door on my child-bearing years (I have no children) coupled with my husband becoming temporarily disabled (back injury) did not help my feelings any! I would come home from work, try to avoid my loving husband and go into my room and just sob. I had never experienced anything like that before. I had unrelenting pain from endometriosis, so my doctor said the complete hysterectomy was the only solution left to alleviate my pain (I had tried other treatments). He said the estrogen would alleviate my hot flashes and that my bones and cardiovascular health were dependent on my taking hormones. That is all he told me; the rest of the symptoms I have experienced I had to learn for myself that they were meno-related. I have seen all too often on these boards that genuinely suffering women are given an extra burden to bear because their doctors too quickly dismiss the idea that their symptoms have anything to do with menopause. I am angered by this, but I realize the ob/gyns are not well educated on the matter. We need menopause specialists! Actually, I believe we have to be our own specialist, for no one knows better than we ourselves whether a symptom we experience is a sign that our bodies hormonal system needs balancing. How can the medical field think for a minute that you can take out key organs to the endocrine system (ovaries) and the body NOT be affected in every way!! The support offered on these boards has been very reassuring to me as well. Take care!
debrikkia
Mar 25 2002, 06:00 PM
Lynch,I can't believe how similar our hyster. experiences were. I also had endometriosis, and the Gyn said the only option was to have a complete hyster. I was told the exact same thing about hormone replacement, and knew NOTHING else about meno.I'm with you about having to be our own "specialists". This is so true. I can't help but wonder how many other women are out there thinking that they're losing their minds--never knowing that it is related to meno? What a shame. Hopefully they'll eventually find their way to Power Surge!Debbi
cynda
Mar 25 2002, 09:55 PM
Hi, I read all your posts and it seems very depressing that all of you have had such painful experiences with surgical menopause. I am 43 and need surgery for inflamation and fibroids. The last 4 years have s*cked one week starting to feel bad then the next week start period and feel crapy and the 3rd week recovering from the second then the 4 week feel great just to start the cycle all over again. My doc says I will feel so much better and will do his best to leave my left ovary but will not know untill he is in there and says it is probabley unlikely. I am so afraid of still feeling like crap with headaches and paplitations and dizziness and like actually feeling like my lights are going out only to go on again, and the nausea and chills. But I do agree that I will most likley no t have leg pain and back pain and bleed untill I am lightheaded and pelvic pain. that I welcome. But what about the rest. What can I do to escape all the crap you all went through after surgery. Please help surgery in April 16th. Thanks
Kalanie
Mar 26 2002, 12:01 AM
Hi Cynda...
If I were you, I would seek a second opinion on the hysterectomy. There are other options these days for those kinds of problems, and without such drastic results. You may be trading one set of problems for another at your relatively young age. Check out all the information here at PS...there is alot here to read and learn... good luck to you. :)
debrikkia
Mar 26 2002, 12:11 AM
Cynda,Remember, I had my surgery 12 years ago. I didn't know there was info out there to help. That doesn't mean that it can't be a positive experience for you. I do know alot of women who have never had ANY symptoms afterward--they simply started taking estrogen immediately. However, today, we are all looking for "natural remedies" for symptoms, and that takes some time and effort, because we each have our own unique needs. Unfortunately, there are not alot of doctors out there, that are informed enough to help us along the way. I'm with Kelanie--DO check out all the info here, and a second opinion couldn't hurt. You won't have as hard a time, because you have Power Surge to help you through, and help you figure things out for yourself! And, of course, all of us are with you, and will be thinking of you. Please keep us informed as to what's going on with you, okay? You'll be fine0-either way!Debbi(ps-don't forget the new daily chats--you can find the schedule's on the boards)
(Edited by debrikkia at 11:14 pm on Mar. 25, 2002)
cynda
Mar 26 2002, 12:07 PM
Kalanie and Debrikkia,
I really appreciate your comments. I did have a second opinion by a doc in the same office. He felt just having the uterus out would help alot of my problems. He specializes in lapo surgeries. My doc specializes in vaginal hysterctomys and hormonal treatments. He only sees peri and menopause patients. He keeps himself very educated with new treatments and natural but also is old schooled. I will have both of these doctors during my surgery so I hope we don't have a war going on about what to do or not to do! HAHA I have tried to express my concerns with other symptoms getting worse but they seemed more focused on the getting rid of pain and the bleeding issues.. I suppose they feel take care of the other symptoms after taking care of this one. Even if I don't have surgery I am faced with sorting out these symptoms anyway and thats what I have been doing for a long time. This site has definitly helped with comments and suggestions. I just need to try and be positive and trust that my doctors are well educated and have had success with many patients. But it is so hard for me I second guess all the time! I would like to not have to deal with the bleeding and pain so having surgery is the only solution for that , its just what extent of surgery, does it have to be my ovaries, I guess they truly won't know untill they are in there.Please I welcome all your support and comments. Thanks so much.I am sure to keep talking alot the next couple of weeks just to get through this.
LYNCHMOB
Mar 26 2002, 12:21 PM
Cynda--I hope your hysterectomy is all a POSITIVE experience. Certainly an end to terrible pain is quite a relief! Part of the reason I feel I had a hard time with my hsterectomy is because--1) I had not had childrem and I wasn't ready to close that door yet; 2)I had a complete hysterectomy with no hormone replacement for a while to make sure all stray endometrial tissue had died. Since you don't have endo, that shouldn't be an issue with you. 3)I did not educate myself about all the changes that could be involved with a complete hysterectomy. Since you will be able to keep at least one ovary, this should not be a problem for you. But, yes, do educate yourself about this procedure and its possible long-term implications, do seek a second opinion, and then do forge on with the peace of mind that comes from making the best decision you could at the time! It is not all negative, although it is nice to come here and share with understanding people the discomforts that this part of the aging process brings to our lives. This is especially the case because some of us are having to experience menopause at an earlier than normal age, therefore most of our friends do not understand what we feel sometimes. Take care and welcome to this place of warmth, comfort and sharing!
Kalanie
Mar 26 2002, 01:04 PM
Hi Cynda... Like I said, there are other options... I had horrific pain and bleeding stopped without a hysterectomy. :) You might want to ask your doc about the possibility of a hysteroscopy/myomectomy... I had fibroids and several polyps that were causing my pain and bleeding problems removed this way, and the problems are gone. I just hate to see someone do the hysterectomy thing if there are other lesser, drastic options. :)
debrikkia
Mar 26 2002, 05:30 PM
Cynda,Again, I "ditto" everything LynchMob said. My experience was almost exactly like hers, and the reasons I had problems after, were the same as hers--ie, mostly lack of knowledge.If you do have the hysterectomy, you for sure will have relief from the pain and bleeding. Hopefully, with your doctor's help and the information available to you, you will have no symptoms. We need a good success story once in a while!!I had my "regular" doctor assist with my surgery also. My GP absolutely said the hysterectomy was not necessary. My GYN (who is well known for his expertise in meno and infertility) said it absolutely WAS necessary. I wasn't sure what would happen during surgery!! My regular doctor had to back down afterward, as it turned out I had the worst case of endo they had ever seen! (However, I didn't have pain--just bleeding and stuff)You have covered most of the bases enough to make an informed decision. Lynch is right--we take what we learn, and try to make the best decision we can, at this time. You'll make the right one for you!!!Debbi
jilly06
Apr 2 2002, 10:20 PM
Has anyone ever filed a lawsuit against a doctor?
My OBGYN removed my perfectly healthy ovaries while doing a hysterectomy. It is in my chart that he was only suppose to remove the ovaries if there was cancer or another life threatening condition. I truly believe he did not read my chart beforehand. I am unable to tolerate estrogen due to breast problems when on estrogen so now am at risk for heart disease and osteoporosis in addition to depression.
Has anyone else ever gone through something like this?
Cabo
Apr 4 2002, 02:00 PM
Cynda Hello I feel how anxious you are. I had a hyster 16 mos ago. It was an emergency surgery that required blood transfusions as I was basically hemorraging. I too like you never wanted to undergo that surgery. I had a couple of D&C's and tried other methods to prevent the blood loss every month. To no avail then WHamo in hospital being operated on. I explain in detail to let you know I didn't want this at all. Now, the good side is that after having the surgery within 1 month I felt like a new person. You know when you bleed so much you forget to know how bad you feel all the time. Especially physically, but additionally emotionally. You just never seem to have energy and that takes effect on your personality. How could it not! It sounds like you will be clearing up a few serious problems with this surgery. There are many things and much help especially here, my goodness we are so blessed. I found this wonderful sight through error in the beginning of March this year. I would say to you to make a big effort to have a positive frame of mind about this whole thing. No matter how hard it seems the next day even if it takes you 2 hours to sit in a chair do so as that is what will speed up the process of healing. Walk walk walk as slow as a mouse, but walk. Drink so much water.Then something so hard for us to do, BUT DO IT- Rest. It will take a while to be yourself but you will be better. I hope this is helpful, I know I would have appreciated insight. I hope you keep us posted. We will think of you on April 16 .Take care and Peace Cabo
cynda
Apr 11 2002, 12:41 PM
Cabo,
Thanks for your response. I have had a difficult time with this decision and have dedcided to put it off untill after the summer and schedule in September when the kids are back in school. I have not felt comfortable having surgery now because of spring and summer is such abusy time with my family, we have soccer tournaments, skateboard contest and wakeboard tournaments practically every weekend until end of August. I am going to try to build up my strength physically during the next few months and get some disc problems taken care of so I will feel the strength to be able to get up and heal after surgery. All the pressure of responsibilites just kept haunting me so I dedided if it can wait I can wait. I may start the bcp to see if this helps to shorten my periods and lighten the flow, I not sure, we'll see. As far as the ovary pain, I don't know of any thing to help it except surgery. I may try an edometrial ablation during this time and if it doesn't work then follow through with hysterectomy and the ovarian removal, hey if it works I will just lose an ovary. So many decisions, just need a time when I won't have pressures of so much going on. I want to be there for all of these activities, they can never be replaced. Thanks for your letter and I will keep in touch through the message boards.
Dee3
Jul 23 2002, 04:22 PM
Hi everyone, I am desperately trying to find resourcesto help me since my hysterectomy. This I had May 21stdue to a high cancer history in my family and the evidence of some sort of tumors in my ovaries(thank God they were benign). I to went on estrogen I sufferedcomplications,blood clots! It is unclear whether the patch caused this, some doctors think so. Hospitalizedfor 8 days to thin my blood, I left the hospital on a bloodthinner. Within 5 days I returned to the ER hemorraging. I wasn't far enough out from my surgeryand my vaginal cuff started bleeding. I now am off the blood thinners and have a filter implanted to catch the clots. I know how Jilly06 feels. I am terrified to be on HRT and now am suffering headaches and some hot flashes. The doctors say it will take 6 months to a year to come back from the 2 surgeries I had ( the 2nd one after the filter because I was hemorraging so bad.) I would really like to befriend someone going through the same thing, HRT doesn't look like a possibility.
LYNCHMOB
Jul 24 2002, 10:57 AM
Dee, I am sorry for the hard time you have been having. I had a complete hysterectomy two years ago, but I have been able to take estrogen so my case is not the same as yours. I know that I was so unprepared for the shock my body was subjected to. I was kept off estrogen for six weeks (because of endometriosis). I began to have terrible insomnia, hot flashes (except it wasn't a "flash", more like long, hot spells!), night sweats, joint aches and pains and depression and anxiety. I believe your body has to get used to its new chemical balance, whether or nor you take hormones. You still have many options. Discuss this with your doctor, take some time to look around this site. This will help you to make an informed choice that will be YOUR decision, and that in and of itself makes it easier to deal with. Take care, and hopefully other ladies will contribute their experiences. I know there are many on here who do not go the hormonal route, whether by choice or by circumstance, like you. Time DOES make it better!
eileentk
Jul 25 2002, 03:02 PM
Well it's been 10 years now for me and I still struggle as to what to do about protecting myself against side affects from surgical meno. My libido is close to none and I can write a book on insomnia. I have been thinking about Rivival Doctor-Formulated Soy, but I'm not sure? I knoticed that you, Framboise, seem to be in well balance. What exactly do you use and where can I get my hands on it? LOL...
I wish I could say after 10 long years that I have answers for anyone with simular problems, but I don't. Up until a year ago I just took Premarin as my doctor prescribed, but I hate the thought of synthetic hormones. In my opinion what they do to those poor animals to get Premarin is terrible anyways. I havn't found any over the counter "Natural Estrogens" that seem to aliviate my symtoms. There is just so much info out there on HRT, how can you trust one over the other?
mcmarsha
Sep 20 2002, 09:05 PM
Lynchmob:
Is your insomnia pretty much under control? How do you sleep these days and how long after medicating did it take you to show an improvement?
I hope this post finds you exceedingly well.
Marsha
eileentk
Sep 21 2002, 01:11 PM
You know Marsha I have pretty much been this way since my hysterectomy, although not nearly to the degree I was when I stopped taking the premarin. That is truly when the insomnia sky rocketed! And as for coping, HAH, I am like the walking dead most days and ready to bite and devour anyone who steps on my toes. Let me just say this...About a month ago I started taking a natural estrogen cream 5 days a week and a natural progesterone cream 2 days a week after my doctor said my bone density test was not good. So not wanting to take the risks anymore with premarin, because of Breast Cancer running in my family; I decided to use something that by-passes my liver and does not promote BC. The very next day I felt different, I can't put my finger on it, but when you know your body, you just know! Within a week my sleeping pattern shifted and I was able to have a deeper more sound sleep. It still takes me a while to get to sleep, but at least I sleep!
I am not trying to say go off your choice of hormones or start taking what I take, but at least now there is hope that exploring other avenues sometimes is worth it. You should always talk to your doctor about any changes in you hormones. I am not sure if it's the progesterone that is making the difference in sleeping or a combination of the two. Unfortunately no one really tells you that estrogen is in just about every thing you breathe and eat. So I think it's a little to easy to get too much estrogen in our bodies. Doctor after doctor kept saying that I did not need progesterone since I was no longer in child bearing mode. But no one could tell me why if my body would produce it pre-hysterectomy, then why shouldn't I be replacing it after my hys. Most doctors hear "I am not sleeping' and want to pump you full of sleeping pills or anti -depressants.That only helps short term and you can't function the next day.
I don't know if your familiar with Dr. John Lee, but he has some excellent reading on the subject of women's hormones and the important roll that they play in our bodies. This is probably more info then you wanted.LOLBut I hope at least you know that there is someone out there who knows exactly what you are going through. The frustration you feel night after night when everyone else is sleeping like a baby and your still staring at the same four walls, It's horrible! I hope this answers you question. I truly hope that you will find some relief in whatever method of you choose. Please keep me up to date on whatever you decide? I always appreciate the feedback and maybe you know something that I don't . God bless..Eileen
LYNCHMOB
Sep 24 2002, 10:54 AM
Marsha, it took about 2-3 weeks of having the Estrace in my system before my sleep patterns began to re-emerge. Even still, it is not the same as before but I try to not stress over it and give myself a break the next day if I've had a bad night (if my work will permit it!). Even if I have two or three bad nights in a row, eventually when your body needs sleep it will return
LeslieAnanda
Sep 29 2002, 12:37 AM
Dear Friends,
First, I would like to apologize to Dearest and the board. I put my sister-in-law's email address on the post as a helpful service, and I think it was construed as advertising. I promise you, it was not. I was so excited that something finally helped me with depression, I basically ran to the forum in hopes that others would benefit as I had. So, again, I do apologize and I hope my post below is acceptable
I will give a bit of background first
In 1987 I was 29 years old when my husband took his life. I was in alot of pain and my body went into shock. I became very depressed and would wake up crying day after day. Finally, I went for some therapy and was also put on Prozac. But what was strange is that when he died, my hormones changed dramatically. A couple months along, I noticed my skin was much rougher. The hair on my arms darkened and got thicker. I got a few hairs growing from my chin. A huge patch of hair from my forehead across the top of my scalp turned mostly white. After a short while, the Prozac helped me so I experienced sadness instead of crippling pain and depression, but my body never went back to the way it was.
Then I had a total hysterectomy 3 months ago. (I am still on Prozac and dealt with fleeting sadness but I have had no intense depression for years). I have all the menopause symptoms and I am just starting to work with a compounding pharmacist (Pete Huessman). Recently, I was hit with full-blown depression. I remember the feeling well. Also on top of this depression was dizziness, pressure in my head, hopelessness and brain confusion.
I was told that this could be (at least partly), adrenal exhaustion from all the physical and mental stresses. I took Vitamin B-5 (Pantothenic Acid) every 2 hours along with a B Complex every 3-4 hours and a multi vitamin daily. Within 12 hours my depression was gone!!!! This was like a miracle to me. The dizziness was gone. The brain fog was gone. The head pressure gone. I am still taking these vitamins and it has been 8 days now. I will continue for a few weeks and taper down........hoping, also, that this will help with my other menopausal symptoms! It was also mentioned to me that my adrenals could have been severely compromised during that painful time in my life in 1987, and that may have caused the hormonal symptoms of that time.
This little vitamin has changed my life so far. I will continue on. My heart goes out to everyone here and I hope that this information can be helpful. Please know that this is not medical advice but what has helped me tremendously.
Much Love,
Leslie
AmazinGrace2day
Sep 29 2002, 09:11 AM
I've been reading some of your posts. What's a woman to do? There seems no easy answer for this HRT thing. I had my complete hysterectomy in June of this year, ovaries and all. I was on the hormone patch and developed skin problems and had to switch to the tablet form. On the first couple of tables had severe migranes which I have battled all my life. So on my own I start cutting the pill in half. I don't know if this was smart or not, buy my headaches are definitely better. But on some days I am climbing the walls and am like a barracuda at work and home. I also fear the risk of breast cancer which is in my family big time. So if anyone has any suggestions, I'd appreciate it. I am 50, so I guess I have a few years to deal with this.Thanks!
MaryO
Sep 29 2002, 10:33 AM
QUOTE
So if anyone has any suggestions, I'd appreciate it.
Lots of great suggestions here:
Power Surge Recommendations and on the rest of the massive Power Surge site
Nisha
Oct 3 2002, 09:29 AM
Hello everyone,i dont think theres an easy answer for any of this but we have to trudge on. I posted the question Diet alternative to HRT? is there any? i have tried just about anything an everything and found that the best thing for me would be to incorporate my hormone with my diet. I have a good eating habbit, exercise, live an active life ( have two teenage kids and a 5 yr old) hectic husband and full time job. :-) (this is me still trying to smile)I try to ensure enough time in a day for myself but find that the thing i battle most with is the emotional rollercoaster that the Hyst. has put me in. :'( if you know of even just one thing that will help i would appreciate it
Dearest
Oct 16 2002, 12:47 PM
You'll be interested in last week's guest.
As seen on Good Morning America, ELIZABETH PLOURDE, C.L.S., M.A., is a licensed Clinical Laboratory Scientist, with a B.S. in Biological Science, an M.A. in Psychology, and currently completing her Ph.D., has spent the past decade working in cutting-edge medical research laboratories. Her research into the standard medical practices offered to women today, and the ability to convey a new level of understanding for women's health care in the 21st century, plus her own personal experience with a hysterectomy, led her to write, Your Guide to Hysterectomy, Ovary Removal, & Hormone Replacement: What All Women Need to Know. While dispelling many myths in her book, she discusses how sexual hormones influence the entire body and preserve every woman's life-long vibrant health; how your body has its own built-in anti-oxidants and anti-depressants; why today's standard medical practices of tubal ligations, hysterectomies, and ovary removal can set women up for future sexual dysfunction, heart disease, osteoporosis, depression, fibromyalgia, and bowel and bladder dysfunctions; insights into the perplexing decisions regarding HRT and enjoy smoother sailing in your relationships, as both women and their loved ones learn that there are answers for the imbalanced or insufficient hormones, which can alter women's capacity to function in the world.
Read the transcript with Elizabeth Plourde.
Dearest
patience
Dec 7 2002, 05:32 PM
Hi, I am new to the power surge family. I am now 3 1/2 years post TAH, BSO and am still trying to balance my hormones, emotions etc. Immediately after my surg. i had panic-attacks for months. This was helped minimally with Xanax. I was on Estrace i think then. I now do not have panic attacks anymore, but do have an underlying anxiety-depression. Also, just recently I have started having "hot flushes" throughout the day, every day. I am not on any hormone replacement anymore as I feel they did not help. But i am trying more "natural" remedies such as Progesterone cream, phytoestrogen cream. What else can I do to help? I thought I would be feeling better than I am at this point.
LYNCHMOB
Dec 9 2002, 05:16 PM
Patience, how fitting your name is for this phase of life!! Unfortunately you have experienced a major disruption of your endocrine system with the removal of your ovaries and it can be quite challenging to balance. I understand, for I had the same surgery done 2 1/2 years ago. There are no 'one size fits all' approaches to resolving this issue, either. Trial and error is what it takes and I know how hard that can be when you are so desperate to feel better. There are many forms of HRT--some oral, some patches, etc.--and each works differently so if one didn't work for you, another may. Also, it may take another strength than what you had previously tried. There are also many herbal remedies to try. This website is very good; I encourage you to avail yourself of the wealth of information here to help you make your own individualized decision as to what will be best for you. I might suggest you try one thing at a time, though, so you will be better able to know what helps and what doesn't. Finally, like no other time in your life this is a time that you must take care of YOU. As women, I believe we are accustomed to caring for others first and ourselves last. With a complete hysterectomy you must guard your health in a way you never have before. This includes proper diet, exercise and stress reduction. That last sentence said a mouthful and there again there is no 'one size fits all' way to deal with them. I know I have found this website to be a great support system. I have benefited from reading the posts as well as the informative information that Dearest maintains on this site. It's interesting to me that what works so well for one woman will do nothing for another and vice versa. So we all benefit from sharing so the options are laid out for all of us to decide what is best for us.I have found this to be a very personal decision. What I mean is, even sometimes the doctors, who we trust to be the medical professionals, don't always know what is best for us as individuals; only we as individuals can know that. Take care and I hope you get to feeling better soon.
patience
Dec 9 2002, 05:42 PM
Thank you Lynchmob for your great concern. I am much encouraged as I realize I am not alone in how I feel, which it seemed for a long time I was. I know things will get better and I plan to become as informed as my brain will allow !! It has been a slow process, but I am better every day. I am also seeing a female christian counselor and she feels not only is some of my depression "chemical" related to my hormones/hysterectomy, but also issues in my life that need to be dealt with, and so she is helping me with that aspect as I fully believe we are spirit, soul and body, and all must be in balance...i think its gonna be nice to be a part of this "family" !!
sherri
Dec 10 2002, 12:59 AM
As there was a desire earlier for posts from women who've undergone hysts (LAVH/BSO in 2000), I thought I'd tell my own experience.First off, let me say, I'm glad I had it. I had so much pelvic/back pain beforehand, my perimenopausal symptoms were terrible but I could not take any bio-identical HRT because I still had my ovaries (and they were still working, even tho' not well), and the prolapse had essentially ended my husband's and my intimate life. Plus, I have a LOT of cancer in my family and it was good to lower that risk, somewhat.Sometimes, I do feel that it would be easier to still have an ovary (that, IF it was not in complete shock from the hyster.), but I realize the pluses it has allowed. Being able to control/eliminate or decrease my symptoms, lowering (somewhat) my cancer risk, etc.After the surgery, I was put on 1.5 mg Estrace and 200 mg. Prometrium. Unfortunately, I had an adverse reaction to the Prometrium (I have a lot of allergies). So, I dropped it and continued with the Estrace. I felt pretty good and normal for a year and a half. Then, I started having headaches/migraines again (I'd had them every month for 6 years prior to the surgery). My gut told me that I was taking too much estrogen, so I lowered my dose to 1 mg. It helped! The headaches were somewhat less frequent and I didn't have as much feeling of my head being "full" of pain when I did have them. At this point, due to a lot of reading/researching on natural progesterone cream, I decided that it would be a good thing to use to help me wean down even farther off of the estradiol. Plus, I had started experiencing increased anxiety and insomnia, when the headaches had re-started (remember, that was BEFORE I started lowering my estradiol dose!).Now, I'm taking .5 mg estradiol(a.m.) and about 10 mg natural progesterone cream (p.m.). I'm feeling better than I have in a very long time! I get plenty of sleep, I'm nice (I think), I'm much less anxious, my headaches are very infrequent and then very light, and I know that with every dosage of estrogen I'm able to lower I decrease my cancer risk still more. At this point, I believe that I will stay taking this amount for a while. Then, if my dr. agrees, I'll try (possibly) Bi-est SL and probably continue the natural progesterone.(I love how it makes me feel - my libido is even somewhat back!). I'm also interested in estriol vaginal cream. I know I have a urinary problems without any estrogen (but then I did the last year before the hyst. too).Soy doesn't digest well in me, unfortunately. How's that phytoestrogen cream helping you, Patience?
Sherri
P.S. I do also take a b-complex along with my multi-vitamin.
patience
Dec 10 2002, 07:34 PM
sherri, I have only been using the phytoestrogen cream for several weeks plus taking a supplement by Natra-Bio called Hot Flashes/Menopause relief that has among other things, Black Cohosh in it. These two products along with the estrogen cream do seem to be helping with the "hot flashes". I am also taking several Vitamin supplements including the B-vitamins and a St. John's Wort complex supplement. All these together do seem to help my emotional roller-coaster and my anxiety-depression is getting better !! I also try to avoid too much sugar and caffeine (key word is try cuz I have a weakness for sweets !!). I wonder if that Prometrium might be something I need, or am i getting that with my estrogen cream? Yikes! there is so much to know!
Kalanie
Dec 10 2002, 10:35 PM
Sherri and Patience... I believe that prometrium is natural progesterone.
sherri
Dec 11 2002, 10:40 PM
Vickie,
Yes, Prometrium is natural micronized progesterone, however what was available to me was the form that is made with peanut oil. So, it was either an allergy to that that I experienced or too high a dosage of progesterone. The dr. and I were never sure. One thing is sure - I don't have that same reaction to the cream, at a much lower dosage. It's great! Since I have so many allergies, the fact that natural progesterone helps the body handle those really makes a difference to me. It seems to help somewhat (not totally) with my aches and pains, too.
Sherri
kamie
Dec 18 2002, 07:56 PM
Hi Ladies, Well, this is a HUGE subject. totally complex and full of news and information to all that applies in personal care and the management of our bodies post hysterectomy.My hysterectomy was back in April.20 days after that my colon stopped working and I had to have emergency surgery.I am currently scheduled for another surgery in January to get the one remaining ovary out of my body and clean up some suspected adhesions and left over Endometriosis.It's has been an interesting journey and I have investigated most of the above mentioned practices and ideas and herbal phytoestrogens and other phyto hormones and creams and HRT and patches and bio-identical this and that. And several months down the road and a nice little case of heart failure later, I come to find out that many many of my woes are connected to a metabolic disorder that affects my hormones and my heart and my mood and my hair growth and even the color of my skin.I have a problem where my Pancreas makes too much insulin and the whole Insulin/sugar monster goes nuts and throws my body into crisis while my blood sugar levels drop to dangerously low and lower to the point I could slip into a coma or suffer brain damage.So, it's been a week now and the Endocrinologist put me on an anti diabetic medication.I am not now a diabetic.But if my Pancreas keeps over producing , one day my pancreas will get worn out and then I will be a diabetic.Keeping my condition under control requires both medication and a change in diet and exercise.Some people can do with just the diet and lifestyle change, but for me, I need the whole key right now.Even though I fetl I was eating healthy, there are a few more dietary adjustments to make and since I have been ill, my exercise levels are not what they used to be so that means more effort at something cardiovascular.After experiencing a drop in a marked blood test to a place I often feel my body go, it was just too scary when I found out what the low number means.For diabetics, when the low of the blood sugar hits the 20's it's time to call the paramedics.I dropped to 22. coma kicks in at 20.My heart got so bad by the time I finally figured out I needed an evaluation by the Cardiologist that we couldn't do the stress test for a whole month while he got me stablized on a Beta Blocker. A beta Blocker that I am now taking a huge dose of to keep my Tachycardic heart under control.
Nope. No more doing anything else other than what my Cardiologist and my Endocrinologist tell me to do.No over the counter anything for me.I'm strictly under my doctors care at this time and keeping everything marked, charted and clarified.In my whole exploration of the hysterectomy dynamic, I have come tothe conclusion that there are far more complex reasons for our need to have the standard issue equipment amputated.Interesting fact: The larger percentage of women who suffer from Endometriosis and many of the cluster of gynecological malady, will go on to manifest an autoimmune disorder.What if we are just treating symptoms when we really need to be attending our metabolic realities?Food for thought.Kamie
(Edited by kamie at 6:58 pm on Dec. 18, 2002)
patience
Dec 18 2002, 09:56 PM
Kamie, we all must make informed decisions about our own care, and it appears that you have. To me it seems there is so much good information out there, so many products that promise so much, so many books just waiting to be read that even more information would be imparted to us....its overwhelming at times. If you have put your trust and confidence in your physicians, then thats great for you. I too have decided that yes, i will seek out info on my own and perhaps try different modalities than my physicians have offered, but when your health situation is as overloaded as yours, i too would back down on some of the unconventional treatments...at least until your body is more balanced with the insulin issue and your upcoming surgery. I am practicing some of the unconventional treatments that I have learned from other women, books etc. regarding balancing my hormones. But, i am also seeing a new dr. who specializes in pain management actually, and in the course of my initial eval with him, he ordered some lab work to check out my thyroid function and low and behold, some of the tests were abnormal. He explained to me that if a persons hormones are out of balance, then it inhibits healing in the body. I suffer chronic pain from an auto accident some 16 years ago which resulted in a displaced fracture of my pelvis. Now i am having all the ill-effects of damaged ligaments, muscle etc. that probably has never healed. I have determined that I will follow his treatment advice, but also I am still using other measures for the hormone/menopause issues as I feel comfortable doing that. All my best to you, kamie.
kamie
Dec 18 2002, 11:13 PM
Patience, Oh there is so much I can relate to in your story. I too suffered an accident that led me into the world of chronic pain.I sometimes wonder which came first. The tendecy to....or the physical trauma.I don't know.I have not come to the place where I can look at the situation and make one total decision. However, I suspect it is a bit of both.The tendency to.......my family has the worst medical history, hereditary everything. Diabetes, Hypertension, Cancer, Irritable Bowels, the whole cascade.........and the physical trauma weakening the body from a core level of our structure. And how much more fundamental does it get than our bones.I was in a sports car w/ the top down that flipped and landed me on my head. My head was caught under the windshield and I barely missed being scalped.My leg broke the dashboard of the car and the impact of that pusned one side of my pelvis backwards and the other part forward.
That was 20 + years ago.
And it was the condition of my own pain that sent me into the world of alternatives for my healing.I eventually became a licensed massage therapist w/ a national certification to allow me to apply many many years of learning on the Holistic path into the Wholistic concept and pass the gift of learning on to other people in pain. So much of what we live is our experience and belief becoming our truth. And it is often in those lifetimes of very very intense change and physical struggle that we are indeed creating whole new realities.Yes, the ill effects of damaged ligaments and improperly aligned physical structure really does make a difference in our healing.Up until this last year when my illness came upon me in a sudden overwhelming wave, I had done a lot of physical healing and I managed to manage my pain well enough to ride horses and scuba dive and do a lot of things that most people with such terrible injuries find it impossible to do. for that matter, even though I was on medication for hypertension, my BP was so controled that diving was actually of therapeudic value to my condition. Of course there were restrictions. NO CAVES! but that was a small compromise.About two years ago, I had another physical trauma.I fell off the horse in a big way.Now most people who ride fall off the horse from time to time but this fall was particularly bad and I landed flat on my stomach hitting my chin and flipping my head backwards.Miraculously nothing was broken. but everything hurt. Including my pelvic area and couple of days later,When I went to the ER with the same very pain that took me to the ER again couple of years later.My spiral into this whole physical cascade began with another pelvic injury.The next thing to happen was too much weight in the weight belt diving.Some thing pulled and it spiraled out of control from there. By september I was bleeding so badly that it was like a hemorrage. It took 5 doctors and 6 months to get the whole first surgery organized and going.So I think definately those of us who deal with structural debility do have a hard time regaining our health simply because the structural foundation is not properly aligned. And unfortunately, for some of us, with injuries or for those with birth defects, there is only so much proper alignment that the structure might be capable of.So we do our best.And, when the day comes to change modalities we do so knowing that the next turn also has a proper place in our lives.Each cycle is a cycle of learnings. so off we go to discover the new.Hugs and Hope,Kamie
(Edited by kamie at 10:34 pm on Dec. 18, 2002)
patience
Dec 21 2002, 02:53 PM
Kamie, when i read your story i know that God was with you in that crash and with your horse accident ! You are a walking miracle, girl ! Yes, those that have not ever had any traumatic injury as you and i, perhaps cannot even understand the additional issues we face. Not just the physical pain, but the psychological pain that often lasts much longer. With your career in massage therapy, you have much understanding about body anatomy and function. I am proud of you and it does not suprise me you are in a "healing" career. I understand also that when one suffers chronic pain long enough, depression is likely to set in...which i believe is one of the aspects of my own depression. Ever since my accident, being intimate with my husband has been difficult, then after my hysterectomy, it became even worse. So the joy in a very important part of my marriage has basically been taken away from me. But , we have learned to deal with it, as with other losses in our life !! I am somewhat excited i guess about this new treatment i am trying for my chronic pain, perhaps you have heard of it, its called Prolo therapy. If i understand it right, the dr will inject an irritant substance in whatever ligaments and soft tissues that i have had injury in, and the theory is that it will increase the blood flow and cause healing, even after all these years. I know several people that have experienced much improvement in their "injuries" etc. with this treatment. Anyway, as you say "off we go to discover the new" !!! Blessings and joy to you this Christmas.
kamie
Dec 21 2002, 05:01 PM
Patience, Yes, I do believe that I have had a good deal of Miraculous help in the way of my Physical collisions with injury.So being, I have learned to really appreiciate the good days or the slowing down, however fustrating, because I can still get along with my own physical strength.I have not heard of the treatment you are getting. I will look it up because It sounds interesting. I am fascinated with so much of the progress for chronic problems. I recently heard something about Botox being used to treat Traumatic Brain injuries that cause the body to go spastic and for other movement disorders.But it sounds like the therapy you are getting works differently.I've aso heard that Hyperbaric Chambers are great for chronic pain.As for the intimacy problem after the hysterectomy, well, that's not supposed to be "normal" and it is a sign that something has not healed right or there may be an underlying problem that was missed.I am getting my 3rd surgery in less than a year for some things my Endocrinologist feels might have ben missed in the hysterectomy.For the intimacy problem you might want to find a good body worker who can help you by working with your glutes and the bottoms of your feet.Those are key points for me and my pelvic problems.I also use Olive Oil for our romantic interludes.You can get the extra light kind so you don't smell like the salad bar. However, if you can deal with the smell, the extra green kind would be best. Olive Oil is a natural Estrogen carrying plant substance. However, not as much as soy or wild yams. So being, I personally like it better for my body since too much estrogen was a problems for too many years.(but that's a whole other long story)Anyway, Olive is enormously healing for intimacy problems resulting from physical trauma.Also, you and your husband might want to find you personal comfort zone and gradually move through the exercises of reconstructing intamcy by using depth and penetration Judgment. If it hurts past a certain point, just don't go there.Have you husband use his hand for a barrier and if you are comfortable enough begin with the top position for yourself because you will have better physical control of your physical situaion and you will also be able to allow the gravity of the whole situation assist in the small and gentle alignment of the unit as opposed to other positions where you're spine is upside down and your back is scrunched.The Barrier/good healing Olive Oil /Gravity and a whole approach of reconstructing intimacy might be helpful .keep me up on the news of your treatments with the Prolo Therapy.Who knows, maybe what ever has been "lost" for a little while might be found :-)Have very happy Holidays!Yea! It is now Winter! My favorite season.Kamie
(Edited by kamie at 4:03 pm on Dec. 21, 2002)
(Edited by kamie at 4:05 pm on Dec. 21, 2002)
(Edited by kamie at 4:06 pm on Dec. 21, 2002)
danak
Jan 9 2003, 10:26 PM
Hi,I.m new to the boards though not to menopause. I had a total hyst. (uterus and ovaries) 2 years ago. I just started using Estrace vaginal cream to help the parchment-like vaginal lining. I won't do hormone replacement with estrogen pills. What is the good news about progesterone cream and should I use it. I am 55 but have lots of love to share with my husband and my libido could use a boost. HELP!!!Emsmom
kamie
Jan 10 2003, 03:27 AM
danak, Personally, I like pure and natural Olive oil. The light kind does not have that pasta primavera scent to it.Fruits with pits are natural foods more rich in phytoestrogens. that would be the hepful olive oil too.I've always found Olive oil to be both healing and nice for the skin. My vote is out on the Progesterone creams. Just doesn't feel right to me so I have not made any investigation into the subject for my own personal use.Also, by adding a little avacado and a sweet potato here hand there will also help with some natural food estrogens for the body. However, I tend to stay very far far away from Soy in any of it's forms, no matter how estrogen rich it may be, because I'm absolutely sure that I have a errible allergy to that stuff.i never have a good expereince with it and then I'm sorry I tried.Soy is right up there with peanuts on the hgh allergin list.Kamie
freakofnature
Feb 21 2003, 03:51 PM
A friend's wife gave birth to their second child a month ago, and due to complications, she had to have a hysterectomy yesterday. She's probably about 36 and their oldest will be two in April. Anybody out there have a similar experience and have any advice I can pass on them?
Thanks.
Thanks.
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