Hi, I'm new here. I apologise for the long post but I feel so wonderful to have found people with similar problems.
I discovered this site whilst searching for internal tremors, vibration, buzzing which has driven me crazy for 4 years and just gets worse ans worse. It feels to start in my lower abdomen and spine but I feel it all over. If I look at a straight line on a morning the line seems to vibrate so it's even affecting my eyes.
A bit of history. I had a total hysterectomy 18 years ago shortly after a terrifying pregnancy when I had toxaemia, a very very premature baby and an ovarian cyst. The grapefruit sized cyst was the reason for the emergency hysterectomy. I went straight onto HRT for 10 years but nothing for the past 8 years. I'm now 59.
4 years ago I woke suddenly in the night screaming with pain over my hip and with a fast frightening pulsating feeling in my abdomen. Totally out of the blue.
Now after seeing neurologists, neurosurgeons, pain consultants, rheumatologists and gynaecologists, having MRIs bone scans, abdominal x rays and scans and blood tests I'm no further forward and have to use a wheelchair because of the pain. I have suspected nerve root entrapment at the lower end of the thoracic spine but no one has proven this. In fact apart from being put on opiates for the pain, no one has done anything. Oh I also have IBS (barium x ray and colonoscopy are clear) and a partial bowel blockage, presumably from adhesions.
I wake up suddenly during the night with the most awful vibrating, buzzing/ pulsing in my abdomen but can feel it all over my body. I also have a pop pop popping feeling low down on the left. As soon as I get up it feels as if that was gas popping through a bowel blockage which suddenly releases and rushes on down. I almost pass out from the sensation and as soon as I have passed huge amounts of gas, I get terrible back pain and an instant urge to go to the toilet. This has been diagnosed as IBS but I think it's a panic reaction to the popping and vibrations. The medication I take should actually cause constipation and did up until last October.
I haven't been able to find a trigger for the buzzing tremors. Some days used to be fairly unnoticable but now it's constant. I feel as if I'm permanently in tears or on the toilet or having a panic attack and palpitations. My GP doesn't seem to be interested and thinks I'm just hysterical. I could cope with the pain but this tremor feels like something is alive inside me and | want to just get a knife and cut it out or at least see what it is. I've lost count of the number of times I've been sent to ER suspecting that it's an aneurysm but it's way too fast for that. The pain consultant says nerve damage but from reading these posts I see unbelievable similarities. It is definitely the nervous system that's gone hyper for whatever reason. I'm desperate and haven't been able to leave the house for 3 months now.
It is such a relief to hear that others have it too although I am so sorry for all of you. I'm afraid to take magnesium in case it makes the IBS worse and I don't think the brands mentioned are available in the UK.
Is there any doctor or hospital that understands this?
Sorry for the long post but this is such a relief.
BTW I also have tinnitus, terrible dry scaly skin, wake at night wringing wet and feeling as if I am burning up and pour sweat suddenly if I drink a cup of tea or exert myself, oh and dozens of the other symptoms that have been mentioned plus I now have a bladder prolapse and nerve damage to the bladder wall caused when I had the hysterectomy