Lost that "special" feeling, Clitoris is dead??? Options

[pieddove]

Hey Janet,

Please do not think I'm trying to change your mind. We all have to do what we believe is best for us. But I do believe they do the pellets in the UK. Alot of the research comes from there. As for maybe getting too much with pellets, most doctors start out on a lower dose based on your testosterone levels from blood tests. So far none of my pellet friends have complained that they've gotten too much. I would be leary of testosterone made for men. I agree with pieddove that testosterone for men is probably not bioidentical resulting in stong of reactions.

This is according to Dr. Rebecca Glaser of hormonebalance.org

You may wonder why you haven’t heard of pellets. Pellets are not patented and not marketed in the United States. They are frequently used in Europe and Australia where pharmaceutical companies produce pellets. Most of the research on pellets is out of England and Australia with some from Germany and the Netherlands. Pellets were frequently used in the United States from about 1940 through the late 70’s, early 80’s when patented estrogens were marketed to the public. In fact, some of the most exciting data on hormone implants in breast cancer patients is out of the United States. Even in United Stated there are clinics that specialize in the use of pellets for hormone therapy.


Nancy

Glaser is the one that did my implant and I was surprised after having my entire blood profile done that she would only do the testosterone implant. I found she is doing some study on these and when in her office she gave a handout that really scared you about the estradiol implants. It was basically you would probably bleed and you would then have to go back to your own Dr. to deal with the problem. I had the feeling she just didn't want to mess with it. she had a nurse come in and tell you about a vaginal E and P you could use along with your T implant.
When I had the horrid flare up with the rosacea I called and I can't say I was satisfied since no one responded and then I called back the second time.
The supposed nurse said I could prehaps take Saw palmetto and that she would talk to the doc and get back ,but never did.
since then I got an e-mail about Glaser's study she is doing with the T implants and that I was of course a part of it. I feel like her guinea pig since what I wanted was hormone balance and of course the Estradiol pellets too.
I am not pleased, but still believe that done right the implants could be the way to go.

Best wishes!

Sharon

[njw753]

Hi Janet,
Yes, balance can be a tricky thing. I had my hyst with both ovaries removed 20 years ago and it was only 4 years ago that I discovered testosterone replacement. Yes, 16 years of no sex drive. I did always have estrogen replacement, but now with both I feel better than I have in years.

Nancy

[Kayo]

I have used this model. I think for me it wasn't able to stay where I needed it, my clitoris. I also did not like the anal vibration either. I have used several small vibes for my clitoris while having intercourse. Recently I bought the Hitachi wand. It just plugs in. it is quite large, but I can hold it fine during sex, works well for me. It has two speeds and powerful.

Kayo,
You've actually tried this particular one? How funny! I have two friends that love it and the jury is still out for another. I havn't tried it myself. Is there one you recommend?

Nancy

[njw753]

Kayo,

Well I bought it! It was on sale for $14.21 since I'm a VIP member!!!!! LOL

I will report back with my findings!

Nancy

[njw753]

I am so disapointed in hearing that about Dr. Glaser. Her website is really good and informational, but your experience is what counts. Why in the world wouldn't she want to balance the whole woman, that's what we need, not just testosterone. She's off my list now!

Nancy

Glaser is the one that did my implant and I was surprised after having my entire blood profile done that she would only do the testosterone implant. I found she is doing some study on these and when in her office she gave a handout that really scared you about the estradiol implants. It was basically you would probably bleed and you would then have to go back to your own Dr. to deal with the problem. I had the feeling she just didn't want to mess with it. she had a nurse come in and tell you about a vaginal E and P you could use along with your T implant.
When I had the horrid flare up with the rosacea I called and I can't say I was satisfied since no one responded and then I called back the second time.
The supposed nurse said I could prehaps take Saw palmetto and that she would talk to the doc and get back ,but never did.
since then I got an e-mail about Glaser's study she is doing with the T implants and that I was of course a part of it. I feel like her guinea pig since what I wanted was hormone balance and of course the Estradiol pellets too.
I am not pleased, but still believe that done right the implants could be the way to go.

Best wishes!

Sharon

[pieddove]

I am so disapointed in hearing that about Dr. Glaser. Her website is really good and informational, but your experience is what counts. Why in the world wouldn't she want to balance the whole woman, that's what we need, not just testosterone. She's off my list now!

Nancy

Hi Nancy,

I was impressed by her website too and that she was actually in Ohio ...and reachable for me. I thought it would be great to have someone actually do a hormone blood profile and maybe figure me out. I held so much emotionally in that one appointment. I am very disappointed and have no idea who one can trust anymore. I am just now trying to figure out things for myself.
I couldn't believe I couldn't even get a follow up of information. I swear the woman that was the supposed nurse knew less then I did as far as hormones. She comes in initially with the sales pitch and shows you the cream (bi-est + P} that they want you to order from a compounder and explains how you put it up and on your vaginal area. I should have walked out ,but the Doc swore i would love the T implant and it would help me with the dry eye, nose and rosacea thing. Well androgens increase the problem with rosacea. I'm really tired of being taken advantage of because I no longer have the time or the money or the emotional stamina to deal with stupidity!

Best Wishes!

Sharon

[njw753]

Janet,

I am so sorry you had that bad experience. I don't blame you for being frustrated and wanting to give up. Your experience doesn't match up at all with her website. My pellet friends and I have a stupid doctor list. I'm adding her to it!

I hope you can find someone or something to get some help.


I do have a list of pellet doctors from all over the US. There is another on the list from OHio. Maybe worth a call at least.

Pettit,george, 1729 27th St Portsmouth Oh 45662 740/354-1434

Let me know how you do.
Nancy

[pieddove]

Hi Nancy,



Thanks for the Doc's name in Portsmouth !
I was wondering how you do your Progesterone with your implants. Do you use it daily or cycle? I am very sensitive to the stuff !

Best wishes!

Sharon

[njw753]

Hi Pieddove,
I don't do progesterone. I have not had a uterus for 20 years. But I think my doctor's website mentions something about that.

The doctor's name came from College Pharmacy. They are one of the pellet pharmacies. Sotto Pelle is another brand. There is a Sotto Pelle certified physician in Mason and Cincinnati. Are these near you?

Nancy

[pieddove]

Hi Pieddove,
I don't do progesterone. I have not had a uterus for 20 years. But I think my doctor's website mentions something about that.

The doctor's name came from College Pharmacy. They are one of the pellet pharmacies. Sotto Pelle is another brand. There is a Sotto Pelle certified physician in Mason and Cincinnati. Are these near you?

Nancy

Lucky you... no progesterone ! Cincinnati is close to 4 hours and I think that Mason is close to Cincinnati ! For now I am stuck with the Estrogel. I can't afford out of pocket expenses anymore. I will check on these though and see if they are insurance covered.
Thanks so much!

Sharon

[njw753]

Vibrating Cock Ring report.

All I can say is OMG! We loved it. One minor hitch, the vibrator on the back side kept turning off from our movement.

LOL
njw

[debradoll]

Sorry Ladies,,But i haven't had a good laugh in awhile I think i need to invest into some new toys for me & hubby

[Ilona]

Thank you ladies for talking so open, you have no idea how much this helps someone like me.
My doc wouldn't listen do much and I also was a little shy talking about this subjekt. The reply was: "We should work with what natur gave us". Now I have to find out for myself, how to help me, what I should take and how to get it.
My anual check up was fine. I don't take any hormones. Never had much problems with menopause....just need to have that special feeling back. I still do enjoy my husband very much...but I know something is missing! I'm to young (53) to give it up!
LOL

[Ethans NaNa]

Nancy,

Do you have a doc that's reputable near Detroit, MI that does pellets?

Also, it is pretty pricey isn't it?

Thanks,

EN

Janet,

I am so sorry you had that bad experience. I don't blame you for being frustrated and wanting to give up. Your experience doesn't match up at all with her website. My pellet friends and I have a stupid doctor list. I'm adding her to it!

I hope you can find someone or something to get some help.


I do have a list of pellet doctors from all over the US. There is another on the list from OHio. Maybe worth a call at least.

Pettit,george, 1729 27th St Portsmouth Oh 45662 740/354-1434

Let me know how you do.
Nancy

[njw753]

Hi EN,

I just pm'd you with info.

Nancy

[kar4242]

Symptoms of Low Estrogen –

Hot flashes
Shortness of breath
Night sweats
Sleep disorders, insomnia
Vaginal dryness
Dry hair/skin
Hair loss
Anxiety
Mood swings
Headaches
Depression
Short term memory loss
Frequent urinary tract infections
Heart palpitations
Frequent yeast infections
Vaginal shrinking
Loss of pubic hair
Painful intercourse
Inability to reach orgasm

Can you tell me where you got your list for symptoms of low estrogen.

Thanks.
Karen

[Anna]

Okay..I feel really stupid even asking this..what about libido help for those of us that have had a hyster and lost everything????? Is there hope????

[Armadillo]

Okay..I feel really stupid even asking this..what about libido help for those of us that have had a hyster and lost everything????? Is there hope????

Of course there's hope.

Read through the posts on page 1 of this thread about testosterone.
Not having a uterus doesn't mean you are incapable of orgasm.

Maybe if you don't have a clitoris, or a vigina with a G-spot, then, you may have lost everything. But they usually don't remove those parts.

I would recommend testosterone in some form or other. There are creams, gels, patches and pellett implantation, as described on page 1.

[Armadillo]

I spelled vagina wrong.

[TidalWaves]

[quote name='Armadillo' date='Aug 25 2008, 12:56 PM' post='237585']


Maybe if you don't have a clitoris, or a vigina with a G-spot, then, you may have lost everything. But they usually don't remove those parts.


Armadillo,

I know you probably didn't mean for this to be funny, but it was.

Gave me a real chuckle........... one I have not had in a very long time!

THANKS A BUNCH!

[Armadillo]

Armadillo,

I know you probably didn't mean for this to be funny, but it was.

Gave me a real chuckle........... one I have not had in a very long time!

THANKS A BUNCH!

You're welcome! I didn't realize the humor at first either, although I'm glad you enjoyed it.

After I re-read that, I realized that the ovaries are sometimes removed along with the uterus, but you don't need those for feeling sexual arousal, either.

[janet c]

Here I am again!
I Responded to another thread on a similar theme last night!
I had endo cancer over 2 years ago. I was and am still not allowed estrogen apart from a tiny bit of estriol cream for dryness. Completely lost my sex drive after hyst and ovaries removed. Was given a small course of testosterone treatment and I had an immediate return of sexual feelings including really strong orgasms!!!
I am still not using any estrogen so the conclusion is
testosterone=libido
estrogen=not much to do with it apart from keeping vagina supple
I would not lie to you
You dont need estrogen! I feel great without it!
The symptoms of low estrogen are absolutely as stated by kar4242-but it is the transition from high to low that causes the symptoms.
I dont have any of them now although I did when I first had my op! I had no choice about whether or not to take HRT. I wasn't allowed it so I just had to be patient. I am glad of it now-I feel better than I have done in years
janet c

[janet c]

Okay..I feel really stupid even asking this..what about libido help for those of us that have had a hyster and lost everything????? Is there hope????

Anna YES YES YES !
See my post above
janet c

[Anna]

LOL My outer girlie parts are still intact---its the inner ones that are missing!
Thanks for all your info and encouragement! I am on a low dose Vivelle Dot patch since the hyster. May have to check into some testosterone.

[njw753]

I hate to sound like a guy, but this, I think, best describes testosterone. A car without gas will not go no matter how hard or long you push on the gas pedal. You can wish as hard as you want, but without gas, it's just going to sit there. Testosterone is what fuels our sexual beings: the ability to desire sex, lubricate and orgasm. Put gas in the car and it goes! Put testosterone in our bodies and "Watch Out World"!!!!

I have had testosterone pellets for 4 years now. And my sex drive is still better than in my whole life! I just got my estrogen and test pellets last week. My last insert before that was estrogen in Dec and test in April. So I was ready. Already, my breasts are fuller and nipples are more responsive again. And my libido is back to wow!

[La*la]

My lady parts can still get tingly, but on occassion sensation has dulled...*sigh*

so, I'mma keep my eyes on this thread..... for sure....

Where are you ladies getting Testosterone ??

I have an apppointment with my naturopathic doc in Nov., could she prescribe it ...??

TIA

[silkakc]

I also am having this problem. I'm 44 and it started at 42:( My orgasms are hard to achieve and are 25% as strong as they used to be. I went a couple months last year when they were painful- it was like a huge muscle cramp happened when I had an orgasm.

I think my estrogen to progesterone ratio is causing mine. I was on birth control pills for 2o yrs. One time. my Dr gave me stronger birth control pills for free samples becasue he was out of my usual kind. (He always gave us ladies 2 free months of pills at our yearly exam) That's what I feel like then- the way I do now. No sex drive ever and horrible weak orgasms or painful orgasms.

So I know going from a BCP that was 1. progesterone and .35 estrogen to a pill that was 1.progesterone and .50 estrogen threw my sex life into turmoil years ago.

I think my estrogen is sky high actually. I am breaking out in hives and itching every damn month for the last couple years. It's always the 5 days before my period and the 3 days around ovulation. I turn bright red in my face and itch from head to toe LOL!

And I think my progesterone is in the dirt. I'm having horrible adrenal problems and my cortisol and aldosterone levels are dangerously low in blood tests and those hormones are made from progesterone! No progesterone means no adrenal hormones:( So, I have low blood pressure and low body temperature and no energy and horrible orgasms LOL! Menopause and peri-menopause are extremely stressful LOL!

[hibou]

At menopause I lost about 95% of my sexual sensitivity; it was as if a "mute" button had been pressed. And with that, I lost 100% of my libido--no sexual urges, fantasies, dreams . . . For three years I tried various cures, none of which helped: vaginal estrogen suppository (Vagifem) (which gave me internal lubrication but nothing else), testosterone patch and testosterone cream (which made my face break out, but nothing else), estrogen-progesterone patch (which got rid of my hot flashes and maintained inner lubrication but nothing else), stimulating creams and gels like arginine (which produced a burning sensation but nothing else), and vibrators (which produced an orgasm so small it barely induced heavy breathing and was about as sexual as a sneeze).
Then I went to a new gynecologist, who told me that EXTERNAL estrogen cream was often the way to go. Even though my external genitalia looked normal, low levels of estrogen had drastically reduced blood flow there. The Vagifem, which works topically inside the vagina, wouldn't help with this, and providing low-level systemic estrogen of my estrogen-progesterone patch (Combipatch) was a very indirect and not very efficient means of restoring the tissues and blood circulation in the vulva. I got a compounded natural estrogen cream, and just a week's application of it to the external genitalia every day has made a dramatic difference in both sexual sensitivity and libido. After three years of frustration for both me and my partner, this seems like a miracle. I have read so many posts from people on this site who have lost their libido at menopause and are miserable on account of it, so I wanted to let people know. Although I guess there are different causes for loss of libido at menopause, this is one people might consider.

[janet c]

What cream are you using and how much are you using a day? I have been using estriol cream (in the same way as you describe)after almost 3 years of no estrogen following cancer. I am having trouble coping with the side effects and at present if anything my libido has reduced. I only use a small amount-about half a pea size of 0.01% estriol every day for the past month.It helps with sensation but I am not really ever "in the mood". I feel as though my head is filled with cotton wool and I can't be bothered. I have already posted about this today and I was advised things would improve after a couple of months. So far its not happening for me!
janet c

[hibou]

I use estriol cream but a higher concentration than yours, .02%, and 1 gram per day, which is more than a pea-sized amount. Also I currently am taking in more estrogen than this because I am still on low-dose systemic estrogen/progesterone--transitioning off it by using the lowest-dose Vivelle patch (delivering 0.25 mg/day of estradiol) with once-a-day progesterone pill (Prometrium). But I don't think it's the extra systemic estrogen that's making a difference, because I used to use a higher-dose Combipatch (0.5 mg) with no estrogen cream and it made no difference in libido at all.